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My nephew Patrick is running in the Boston Marathon to benefit Sanfilippo research!
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Thread: My nephew Patrick is running in the Boston Marathon to benefit Sanfilippo research!

  1. #1
    Retired Staff - Forum Advisor
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    February 26, 2004
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    My nephew Patrick is running in the Boston Marathon to benefit Sanfilippo research!

    So very proud of him! He is running in honor of Jon and Jason and in memory of Ben Siedman. All the money raised goes to Ben's Dream

    here is the site:
    http://www.gofundme.com/runningforacure
    more soon! Thanks for sharing if you can. xo
    Blessings,
    Debbie and the guys

    Mom to Jason (age 23) and Jon (age 27), MPS IIIB

  2. #2
    Forum Helper - Moderator
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    Well done to him!!
    Laura
    Mum to Will dx with MPS II and Lily!

    'It is only with the heart that one can see rightly;what is essential is invisible to the eye' The Little Prince by Antoine De saint -Exupery

  3. #3
    Forum Committee - Moderator
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    October 4, 2004
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    Upstate NY
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    How did he do?
    Robin
    Mom to Avery, 14 yrs
    ^^Logan^^, MPS II (6/14/03-3/15/15)
    and Kara, 9 yrs

  4. #4
    Retired Staff - Forum Advisor
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    2:58:22
    So proud of him!
    Introduction to Patrick’s Run http://www.whec.com/article/stories/s3406893.shtml

    Follow-up interview http://www.whec.com/videos/index.shtml? vid=5060007&v=1
    Blessings,
    Debbie and the guys

    Mom to Jason (age 23) and Jon (age 27), MPS IIIB

  5. #5
    Forum Helper - Moderator
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    That is amazing. What an incredible person,
    Tara

    Mom to Hannah and Luke (9 - twins) unaffected and Jake (7) MPS IIIA

  6. #6
    Senior Member
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    January 3, 2005
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    It was great to meet you there and so great my runner and Patrick both helped raise awareness for MPS!!
    Erica J. Thiel
    MPS I Hurler-Scheier, Age 30
    "Life is A Journey with a Past, Present and Future, But for Now all we have is Today"
    www.rarelydefined.blogspot.com

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