An online petition to Indian Health Minister

[Sib Sankar Chowdhury]

Hi friends.
I have started an online petition to be submitted to our Indian Central Health Minister to take care of Enzyme Replacement Therapy for MPS II or Hunter Syndrome patients. This is all about to get maximums supporters from all over the world to make the petition stronger and logical. Please note that ERT for MPS II, Elaprase or Idursulfase is not available in India. Also the medicine is not registered in India. And as a result my son Arian is not getting any treatment.

Please find the link of the petition as below;
http://www.change.org/en-IN/petition...huntersyndrome

I request all of you please sign it and forward it to your friends to sign. Thanks in advance for your effort.

[Robin]

I signed it, and I will pass it along. I hope that you can get ERT for your son!

[Elizabeth Schuepbach]

I signed it too. Will pass it along to friends as well.

[Sandi]

I have signed it too. Looks like it is getting some good support

[Vidya's dad]

I have signed the petition and shared it on facebook too.

Kasturi Rangan
Father of Vidya , 18 years MPS III ( Sanfilipo)
Bangalore
India.

[Sib Sankar Chowdhury]

Thanks to all of you Robin, Elizabeth, Sandi, Kasturi. God bless you and your family.

[Elizabeth Schuepbach]

Do keep us updated Sib on how it is going. It may be quite a fight but if we can support you any way we can.

[Sib Sankar Chowdhury]

Do keep us updated Sib on how it is going. It may be quite a fight but if we can support you any way we can.

Hi Elizabeth, the petition is going well and have received 47600+ signs so far but we need more before submitting to the Health Minister. I have also started crowd-funding thru http://www.indiegogo.com/projects/help-arian-live to raise funds for the future but response is very poor. I will keep you posted, please continue your support so that we can fight and Arian gets ERT. Thanks a lot. Take care

[carkarrucker]

I sign the petition hopes and prayers that your goverment will listen and that you will get good result very soon.

[Sib Sankar Chowdhury]

I sign the petition hopes and prayers that your goverment will listen and that you will get good result very soon.

Thanks a lot. God bless you. Please be with our plight

[Vidya's dad]

I saw the IBN-CNN television channel prominently highlighting Arian's case and the need for the Govt of India to subsidise the drug required for the treatment.

I sincerely hope Arian will get the best of treatments.

http://ibnlive.in.com/news/help-pour.../478711-3.html