Hi friends.
I have started an online petition to be submitted to our Indian Central Health Minister to take care of Enzyme Replacement Therapy for MPS II or Hunter Syndrome patients. This is all about to get maximums supporters from all over the world to make the petition stronger and logical. Please note that ERT for MPS II, Elaprase or Idursulfase is not available in India. Also the medicine is not registered in India. And as a result my son Arian is not getting any treatment.
Please find the link of the petition as below;
http://www.change.org/en-IN/petition...huntersyndrome
I request all of you please sign it and forward it to your friends to sign. Thanks in advance for your effort.