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Message for Patty T (duplicate from another section)
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Thread: Message for Patty T (duplicate from another section)

  1. #1
    Senior Member
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    March 4, 2008
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    Warren, NH
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    Message for Patty T (duplicate from another section)

    Hi Patty,

    A month or so ago you had mentioned some vitamins that helped Jessie gain weight/muscle mass. I thought I wrote the vitamins down (I think there were 3 of them) in Sasha's medical notebook but it looks like I did not.

    Would you mind posting what those vitamins were again?

    Thank you!!
    Joanne~Mom to Sasha (15 years old, MPS IIIA)
    http://www.caringbridge.org/visit/sashasegal

  2. #2
    Forum Committee - Moderator
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    March 5, 2004
    Location
    Bern,Switzerland
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    Joanne, perhaps it would be quicker to send her a PM. I'm sure she would post it, if she had seen it!
    Lots of love and good wishes
    Elizabeth, Peter, Daniel (MPSIIIA born Jan 91) and Samuel (born Nov 93)and Anna Nigina (born Nov 01)
    'I shall not die, but live and tell of the works of the Lord' Psalm 118 v. 1
    Video about Daniel and Sanfilippo,http://www.youtube.com/watch?v=RPG4w92RgbI
    Daniel's web site: http://www.caringbridge.org/visit/danielschuepbach

  3. #3
    Forum Committee - Moderator
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    She PM'd me on FB too.. I answered there as it did go right to my email.. It was Vanadium sulfate (1-2mgs) and Chromium (200 mcgs) that helped so much, it helped the pancreas to better utilize the insulin he was making.
    God never gives me more than I can handle, though at times I wish the load was lighter :-)
    Love to you all!


    Patty and Jesse
    MPS III A


    http://www.caringbridge.org/md/myjesse < click here for Jesse's website

  4. #4
    Senior Member
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    Thank you again, Patty. I got Sasha a jar of coconut oil but wasn't able to find the 2 supplements you mentioned. I only went to the supermarket but will try the little health food store a few towns over to see if they have those supplements. I might have better luck there. Will keep you posted!

    Thank you again!
    Joanne~Mom to Sasha (15 years old, MPS IIIA)
    http://www.caringbridge.org/visit/sashasegal

  5. #5
    Forum Committee - Moderator
    Join Date
    February 26, 2004
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    If you have a Vitamin Shoppe store nearby, that is probably the best bet... most grocery wouldn't carry them.. a walgreens or Rite Aide might?? Maybe GNC too??
    God never gives me more than I can handle, though at times I wish the load was lighter :-)
    Love to you all!


    Patty and Jesse
    MPS III A


    http://www.caringbridge.org/md/myjesse < click here for Jesse's website

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