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Isabel Jurado Foundation
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Thread: Isabel Jurado Foundation

  1. #1
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    Isabel Jurado Foundation

    http://www.isabelfoundation.org/

    Below is copied from their website:

    Part of the mission of the Isabel Jurado Foundation is to provide support to the families of MPS children. Financial grants are available from IJF and may be applied for by filling the Grant Application form, printing it and mailing to the Foundation.


    Special Needs
    There are many special needs families with MPS III children will face. Below we have listed a number of those needs.

    Medical BillsMedical Equipment/Supplies

    • Co-Pays
    • Procedures not covered
    • Respite care

    • Diapers & wipes
    • Bath/shower chairs
    • Appropriate chew items
    • Special beds
    • Formula for tube feeds
    • Feeding/activity chairs
    • Orthotics (braces)
    • Adaptive clothing
    • Wheelchairs
    • Positioning equipment
    Home Modifications
    • Wheelchair ramp
    • Dutch-doors for safe room
    • Fenced-in yard/area
    • Wheelchair accessible shower
    • Widening of door ways
    Valerie Barnett

    Steffany (06/29/95 to 02/26/11) MPSIIIA
    Stevie "BammBamm" (12/14/97 to 12/31/12) MPSIIIA

  2. #2
    Such a wonderful family offering such needed support for so many. Thank you for sharing this link Valerie
    Misty

    Our son, Will was diagnosed with Sanfilippo, MPSIIIA in June, 2007. He is 6, born February 10, 2003. His loving older sister Nicole is 10.
    http://www.miracle4will.com

  3. #3
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    October 26, 2010
    Location
    Sydney, Australia, Australia
    Posts
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    What a nice site
    Annmarie Gauci, Mum to
    Sam, 8 with MPSIIIA
    Little brother Tom, 5 just cheeky

  4. #4
    Forum Helper - Moderator
    Join Date
    January 27, 2009
    Location
    Mundelein, Illinois
    Posts
    1,859
    Great resource!
    Jamie, mother to Jack (MPS II)

    www.heresjack.com
    www.savejack.ca

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