I'm sorry to post with yet another issue. I don't know how much more of this I can take! Logan's teacher called me this morning and said "Logan had a seizure." That just about gave me a heart attack, because I was thinking grand mal seizure, and he's never had one. Fortunately, it wasn't that. What he had was one of his laughing "spells" (since the Neurologist won't diagnose them as seizures). During his normal episodes, he will just start laughing at an inappropriate time for 15-30 seconds at a time. At the worst, his lips will turn a bit blue since he can't catch his breath. Then we have the other kind, which is what this was. This was the third one of these "episodes" that has had (that we know of). What happens is that he will suddenly start laughing hysterically, like someone is tickling him. He loses muscle tone in his legs and can't stand up. All three times, he has collapsed to the floor, still laughing. They last several minutes and it takes him a few more before he can stand and walk. He had OT right after this one today, and she thought his left side was much worse following the "episode". He has been having a lot of his short laughing spells since.
So, what do you think? I've always thought that his regular laughing spells were more like the laughing seizures that MPS kids seem to have a lot. This seems more like a "real" seizure to me- just manifesting itself as laughing. Like I said, as far as we know, he has had three of these over the past 3 years. The smaller spells probably average one day a week- several spells in clusters. Unless the more serious ones become much more frequent, I'm not ready to risk the side effects of seizure meds, but I would like to know what is going on. I hate having to say "involuntary laughing spells that we think are seizures, but the neurologist doesn't agree" every time I talk about what is going on. Have I mentioned lately how much I hate MPS?????