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Forms of Treatment
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Forum: Forms of Treatment

For children and family members who are considering, or who are currently undergoing a form of treatment for MPS/ML such as Bone Marrow Transplants or Enzyme Replacement Therapies.

  1. Sticky Thread Sticky: Please Read Here Before Posting in This Section

    Started by Jessica, September 29th, 2004 05:47 PM
    • Replies: 4
    • Views: 7,917
    June 25th, 2014, 07:11 PM Go to last post
  2. Sticky Thread Sticky: Bio-Med post..

    Started by ericajth, August 4th, 2009 02:04 AM
    • Replies: 16
    • Views: 6,086
    March 29th, 2010, 06:49 PM Go to last post
  1. Genistien trial in UK

    Started by Riffy, July 4th, 2014 08:01 PM
    • Replies: 0
    • Views: 720
    July 4th, 2014, 08:01 PM Go to last post
  2. Home infusions at last!

    Started by Sandi, June 11th, 2014 03:57 AM
    • Replies: 4
    • Views: 1,120
    June 12th, 2014, 06:59 PM Go to last post
  3. Omfi

    Started by Val, May 29th, 2014 10:01 PM
    • Replies: 2
    • Views: 903
    June 2nd, 2014, 08:07 AM Go to last post
  4. Very exciting news for entire MPS community

    Started by jmeb17, March 4th, 2013 11:01 PM
    • Replies: 9
    • Views: 2,877
    April 6th, 2014, 12:17 PM Go to last post
  5. Epilepsy

    Started by Maholski, February 17th, 2014 07:37 PM
    • Replies: 14
    • Views: 3,308
    April 3rd, 2014, 01:44 PM Go to last post
  6. Moving forward with MPS III B gene therapy!!!

    Started by PattyT, March 7th, 2014 07:44 PM
    • Replies: 2
    • Views: 823
    March 8th, 2014, 06:43 PM Go to last post
  7. Natural History Study for Sanfilippo B

    Started by STACEY_M, January 29th, 2014 08:21 PM
    • Replies: 1
    • Views: 655
    January 30th, 2014, 12:50 PM Go to last post
  8. Question - Elmiron

    Started by carkarrucker, December 23rd, 2013 12:44 PM
    • Replies: 7
    • Views: 1,354
    January 12th, 2014, 04:21 PM Go to last post
  9. Birmingham UK recruiting MPS3B Brain/Blood barrier Research

    Started by esaan, December 21st, 2013 04:48 PM
    • Replies: 0
    • Views: 567
    December 21st, 2013, 04:48 PM Go to last post
  10. Diamox and Intracranial hypertension and or pressure

    Started by PattyT, December 5th, 2012 06:52 AM
    3 Pages
    1 2 3
    • Replies: 42
    • Views: 10,380
    December 4th, 2013, 04:21 PM Go to last post
  11. Botox?

    Started by 5th Wiggle, September 23rd, 2013 12:18 AM
    • Replies: 3
    • Views: 1,278
    September 24th, 2013, 07:05 PM Go to last post
  12. Occupational Therapists

    Started by Meg, August 5th, 2013 09:36 AM
    occupational therapy
    • Replies: 5
    • Views: 1,500
    August 8th, 2013, 06:05 AM Go to last post
  13. Sanfilippo - Questions

    Started by glenn19bo, July 30th, 2013 03:41 PM
    • Replies: 6
    • Views: 1,716
    August 5th, 2013, 09:48 AM Go to last post
  14. Gag results

    Started by sglock, July 28th, 2013 06:38 AM
    • Replies: 4
    • Views: 1,228
    July 31st, 2013, 08:34 AM Go to last post
  15. CBT AND ERT???

    Started by Amber, June 19th, 2013 11:01 AM
    • Replies: 14
    • Views: 3,708
    July 15th, 2013, 08:34 PM Go to last post
  16. Genistein

    Started by Melanie Meyer-Öztürk, March 6th, 2013 03:30 AM
    2 Pages
    1 2
    • Replies: 31
    • Views: 8,361
    June 24th, 2013, 04:51 PM Go to last post
  17. Genistein Zinc Deficiency

    Started by Melanie Meyer-Öztürk, April 20th, 2013 06:48 AM
    • Replies: 3
    • Views: 1,251
    April 25th, 2013, 07:49 PM Go to last post

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