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Day to Day Issues with MPS/ML
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Forum: Day to Day Issues with MPS/ML

This area is for the daily issues we encounter with raising a special child. The concerns in this forum are not necessarily “medically related” but discuss issues of school, yearly IEP’s, skin problems, or other challenges we face on a daily basis.

  1. Buying a Minivan

    Started by Sasha's Mom, September 20th, 2014 08:28 AM
    • Replies: 5
    • Views: 7,784
    September 25th, 2014, 07:50 PM Go to last post
  2. excessive drooling

    Started by esaan, August 5th, 2014 03:14 PM
    • Replies: 4
    • Views: 1,336
    August 18th, 2014, 06:39 AM Go to last post
  3. Laundry Question

    Started by Robin, February 23rd, 2014 04:41 PM
    • Replies: 9
    • Views: 1,916
    June 21st, 2014, 07:38 PM Go to last post
    • Replies: 3
    • Views: 1,371
    May 9th, 2014, 05:03 PM Go to last post
  4. Bicycle tow-behind

    Started by Sasha's Mom, April 1st, 2011 03:48 PM
    • Replies: 11
    • Views: 3,561
    May 9th, 2014, 10:59 AM Go to last post
  5. All-Nighter

    Started by Jake's Mom, April 17th, 2014 04:49 PM
    • Replies: 5
    • Views: 1,422
    April 28th, 2014, 07:14 PM Go to last post
  6. Valium

    Started by Jake's Mom, April 14th, 2014 01:27 PM
    • Replies: 3
    • Views: 1,232
    April 17th, 2014, 08:19 PM Go to last post
  7. synthetic Genistein

    Started by Anja, March 19th, 2014 04:35 AM
    • Replies: 3
    • Views: 1,105
    March 21st, 2014, 04:37 PM Go to last post
  8. Hepatitis C - MPS children

    Started by Vidya's dad, March 16th, 2014 02:55 AM
    • Replies: 3
    • Views: 1,137
    March 18th, 2014, 12:00 PM Go to last post
  9. Lifting kids off of the floor????

    Started by Jake's Mom, February 7th, 2014 01:41 PM
    • Replies: 15
    • Views: 2,336
    March 8th, 2014, 06:41 PM Go to last post
  10. Baby!

    Started by orphan, January 6th, 2014 07:16 PM
    • Replies: 8
    • Views: 1,622
    February 18th, 2014, 09:02 AM Go to last post
  11. movement

    Started by orphan, January 6th, 2014 07:04 PM
    • Replies: 9
    • Views: 2,000
    February 1st, 2014, 11:32 AM Go to last post
  12. Diaper Changing for Bigger Kid on the Go

    Started by ethansdad, January 21st, 2013 02:34 PM
    • Replies: 18
    • Views: 13,205
    January 27th, 2014, 12:53 PM Go to last post
  13. vacuum cleaner / cough assistant

    Started by orphan, January 6th, 2014 06:54 PM
    • Replies: 5
    • Views: 1,657
    January 16th, 2014, 03:05 PM Go to last post
  14. Jerkiness/Tics in Arms

    Started by Jake's Mom, January 2nd, 2014 10:54 PM
    • Replies: 7
    • Views: 1,393
    January 10th, 2014, 04:13 PM Go to last post
  15. Pain in legs or feet

    Started by Anja, January 2nd, 2014 04:32 PM
    • Replies: 8
    • Views: 2,465
    January 6th, 2014, 09:08 AM Go to last post
  16. Stroller/Wheelchair

    Started by shannontravels, August 15th, 2011 12:13 PM
    • Replies: 10
    • Views: 2,453
    December 31st, 2013, 10:54 AM Go to last post
  17. Finally, I don't have to worry about Sleeping!

    Started by EmilysMama, November 25th, 2013 07:37 PM
    • Replies: 9
    • Views: 1,908
    November 30th, 2013, 02:39 PM Go to last post
  18. about bowel control or toilet habits

    Started by aayush kakade, November 20th, 2013 05:46 AM
    • Replies: 8
    • Views: 1,631
    November 26th, 2013, 03:49 AM Go to last post

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