MPS and ML Forums

This forum is for introducing yourself to other members. Tell us who you are and who the special child is in your life.

Surgeries, doctor’s appointments, and other medically related challenges that our MPS/ML children encounter.

This area is for the daily issues we encounter with raising a special child. The concerns in this forum are not necessarily “medically related” but discuss issues of school, yearly IEP’s, skin problems, or other challenges we face on a daily basis.

Special boarding at flight time? Passes to various parks? Restaurants that offer deals? Lots of tidbits to share so come on in!

For children and family members who are considering, or who are currently undergoing a form of treatment for MPS/ML such as Bone Marrow Transplants or Enzyme Replacement Therapies.

The title says it all! This is our hangout and not all subject material pertains to MPS/ML. It’s our get-away from the hubbub so let’s have fun!

This forum is dedicated to the emotions we all feel as MPS/ML parents. Share your funny stories, jokes, birthday announcements, wedding anniversaries, and even on sadder occasions, stories of grief.

Important announcements and updates from the National MPS Society (USA)

Please post all news updates relating to Research, Fund Raisers and Upcoming Conferences here.

A forum for finding Financial and Care Services in the state which you reside. ~Parents helping Parents

If you are having trouble using this forum please post here. Also you can use this forum to make your first post and test your wings! Try out your new signature line or photo or whatever feature you may be trying to add.