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MPS and ML Forums

MPS and ML Forums

Welcome to the MPS and ML Forums.

  1.   Threads / Posts  Last Post

    See inside this topic for further details.
    Thank you to everyone for making this your home for the last 14 years!

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    Forum Statistics:

    • Threads: 126
    • Posts: 1,796
  2. MPS/ML Forum Topics Threads / Posts  Last Post

    1. This forum is for introducing yourself to other members. Tell us who you are and who the special child is in your life.

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      Forum Statistics:

      • Threads: 650
      • Posts: 15,935
    2. Surgeries, doctor’s appointments, and other medically related challenges that our MPS/ML children encounter.

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      Forum Statistics:

      • Threads: 3,755
      • Posts: 63,146
    3. This area is for the daily issues we encounter with raising a special child. The concerns in this forum are not necessarily “medically related” but discuss issues of school, yearly IEP’s, skin problems, or other challenges we face on a daily basis.

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      Forum Statistics:

      • Threads: 1,877
      • Posts: 24,233
    4. Special boarding at flight time? Passes to various parks? Restaurants that offer deals? Lots of tidbits to share so come on in!

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      Forum Statistics:

      • Threads: 42
      • Posts: 343
    5. For children and family members who are considering, or who are currently undergoing a form of treatment for MPS/ML such as Bone Marrow Transplants or Enzyme Replacement Therapies.

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      Forum Statistics:

      • Threads: 804
      • Posts: 9,930
    6. The title says it all! This is our hangout and not all subject material pertains to MPS/ML. It’s our get-away from the hubbub so let’s have fun!

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      Forum Statistics:

      • Threads: 4,527
      • Posts: 77,857
    7. This forum is dedicated to the emotions we all feel as MPS/ML parents. Share your funny stories, jokes, birthday announcements, wedding anniversaries, and even on sadder occasions, stories of grief.

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      Forum Statistics:

      • Threads: 2,951
      • Posts: 50,102
    8. Important announcements and updates from the National MPS Society (USA)

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      Forum Statistics:

      • Threads: 7
      • Posts: 44
    9. Please post all news updates relating to Research, Fund Raisers and Upcoming Conferences here.

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      Forum Statistics:

      • Threads: 747
      • Posts: 9,913
    10. A forum for finding Financial and Care Services in the state which you reside. ~Parents helping Parents

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      Forum Statistics:

      • Threads: 77
      • Posts: 251
    11. If you are having trouble using this forum please post here. Also you can use this forum to make your first post and test your wings! Try out your new signature line or photo or whatever feature you may be trying to add.

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      Forum Statistics:

      • Threads: 270
      • Posts: 2,345
  3. Research Document Library Threads / Posts  Last Post

    1. MPS/ML Research Documents - Members Only

      This is a Library of the latest research documents viewable in PDF form. You must be logged in to view this area. Adding new topics has been disabled, however you can reply to article subjects after they are added by the staff. To submit a document please see instructions posted at the top of each forum.

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Welcome to our newest member, Stephanie Dillingham

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Latest Blog Entry, Pain in legs or feet by Anja

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