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MishLuvsHer2Boys
April 2nd, 2004, 05:12 PM
We finally have received our genetic consultation date, May 27th today (April 2nd). I was told by the woman that called that we'll be meeting with a team of specialists, a metabolic specialist (the top one in the region where we live), a nurse from the metabolic clinic, a dietician and I can't remember who else. They told me that it's a 1 hour appt., they'll be reviewing his files beforehand and probably have us get more bloodwork most likely before the appt. She told me once we get there for the appt. they'll examine him physically and such...and probably request more testing if needed. We also have to go through EEG (sedated), vision testing, allergy testing, sleep study (need ped to get him referred for, due to possible sleep apnea) and Dylan's first dentist appt. (most likely need sedated, need ped to do referral). At least in some ways we are closer to answers but in some ways it scares me more.

I've seen some pics of other kids and there was one that the little guy looks a lot like my Dylan. And I just keep getting this feeling that there is something wrong deep in my heart...just like I did when we got the autism diagnosis.

Paulina Jump
April 2nd, 2004, 08:58 PM
Our thoughts and prayers are with you. We are here for you when you need us. :group

Paulina and family

Jessica
April 3rd, 2004, 09:45 AM
Mish,
I'm happy the ball is finally starting to roll. Maybe now you can get the answers you need! I will keep your family in my prayers!

Jessica

The Rea Family
April 3rd, 2004, 10:14 AM
I'll be thinking of you also.
I hope that you get the answers you need soon.

Laura Brodie
April 3rd, 2004, 01:47 PM
Mish, In the end its probably better you do 'get' the answers -even when there not ones that you want :( .I too am glad you have your appt. and will be thinking of you all love Laura