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Vibe
March 28th, 2004, 02:00 PM
Its so good that this forum exists, itisnt something like this forum in norway. Maybe because it isnt so many with MPS here.

I'm now waiting for a letter from a place called Frambu about a summercamp. Hope I can at the summercamp this year too. I've been there the last 5 years now. Frambu is a place for people with rare disease. The summercamp is for kids and youth/adult with different rare disease. Its 2 camp for kids (10 to 16 year) and 2 for youth/adult (17 to 30 year).

And in november it is a meeting at Frambu for MPSfamily, and I hope I can go there too.

Just want to tell a bit about this :) :D http://www.frambu.no

From Vibeke.

Sheila George
March 28th, 2004, 02:35 PM
I sure hope you get to go, too!! Camp is always fun!!

The Rea Family
March 28th, 2004, 02:43 PM
I also hope you get to go.
Keep us posted.

Vibe
March 31st, 2004, 11:33 AM
Today the letter from Frambu!!! I am going to the summercamp in august, and some of my best friends are going there too. I am so happy, have good feeling inside when I think about the summercamp. Know that I dont have to think about how I am when I am there, noone stares and noone laughing.

Sheila George
March 31st, 2004, 12:00 PM
Wondrful new!! Have a great time at camp!!!!

DebbieV76
April 3rd, 2004, 01:35 AM
That is WONDERFUL news!! :five:
Have a great time!

Priscilla Raftery
April 3rd, 2004, 09:01 AM
WooHoo! :bounce: So glad for you that you get to go! :) Something wonderful to look forward to! Priscilla