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Vibe
March 26th, 2004, 04:26 PM
Hi Its me again :)

I just wonder about two things:

*How do I get a picture like some of you have when you have write a message?

* Is it a ERT for MPS6 in USA? I have chat with a boy/man from USA, and I think he have using ERT, but norwegian doctors do not beleive me. :?

Sorry my bad english.

geordiebarbara
March 26th, 2004, 05:16 PM
Hi
Iam from england. They have just finished a six month trial here at Manchester on Mps6. Their were 6 people on it.
Best wishes Barbara

Tami
March 26th, 2004, 06:51 PM
Hey V!!!!

Welcome! Yes there is a MPS6 trial in the US. click the following for more information http://www.mpssociety.org/news-clinical.html
Also check Here: Click this link for Biomarin (http://www.biomarinpharm.com/BM_ClinicalAndDevelopmentPrograms_Aryplase.html)

I'm glad you found our site! I hope you come back often!!!!!!! :kiss:

Hugs,
Tami
http://www.caringbridge.com/ca/slawson

~Edited by Jessica to fix the link

Jessica
March 26th, 2004, 09:14 PM
Hi Vibeke!
I'll make sure you see this message before I move your topic to General Discussion so you don't think it has disappeared!

To answer your question about the photo beside your name...if you have a picture on line, send it to me at jessicalw@earthlink.net and I'll re-size it and upload it for you.