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  1. ULTRA ACT
  2. Exercise we do for pain in back or leg from nerve pinching or discs.
  3. Side Effect, Or rIs It The $$$
  4. Very helpful drug and supplement checker
  5. Those on weekly ERT...
  6. Treatment of patients with severe types of MPS II and MPS III high doses of genistein
  7. Ataluran (CHOP, PTC Pharma) Study
  8. how long is hurlers diseas damage stopped after failed transplant until next
  9. EYES
  10. New Treatment center coming to the Mid-Atlantic region
  11. Gathering a Sanfilippo list together
  12. Port Placement Locations
  13. Sanfilippo Registration
  14. Ethical Study Intrathecal treatment for MPS3B due
  15. Thanks a million.
  16. Active Duty U.S. Military families and Elaprase...
  17. MPS I: questions about treatment
  18. Rubinol???
  19. Genistein and Hunter
  20. Longvida Curcumin
  21. Genistein and MPS II
  22. Tomorrow is last day to vote for research!!
  23. I just ran across this
  24. Nutrivene Longvida
  25. Side effects Genistein
  26. IVIG
  27. Diamox and Intracranial hypertension and or pressure
  28. Team Sanfilippo Foundation funding of research paying off!!!
  29. ERT - Do you ever miss treatment?
  30. Maria Shahid---MPS6 Family--Elizabeth Shupebach, please help.
  31. Elmiron
  32. Stomach issues, Gastric issues
  33. Best medical physicians available?
  34. Very exciting news for entire MPS community
  35. What Is Natural History
  36. Genistein
  37. Genistein Zinc Deficiency
  38. Genistein Study Amsterdam randomized controlled crossover trial
  39. Gene Therapy Clinical Trials for Sanfilippo A and B Coming in 2014
  40. CBT AND ERT???
  41. Severe Paediatric Neurodegenerative Disease Cured By Gene Therapy In Animal Models
  42. Gag results
  43. Sanfilippo - Questions
  44. Occupational Therapists
  45. Botox?
  46. Birmingham UK recruiting MPS3B Brain/Blood barrier Research
  47. Question - Elmiron
  48. A link for those interested in nutrtion might like..time sensitve!!!!
  49. Natural History Study for Sanfilippo B
  50. Epilepsy
  51. Moving forward with MPS III B gene therapy!!!
  52. Omfi
  53. Home infusions at last!
  54. Genistien trial in UK