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  1. Skyla is in pain
  2. Dilemma.. VP or Reservoir
  3. Skyla's x-ray
  4. And so it begins!
  5. We have an appt with a neurosurgeon this morning
  6. Update after neurologist visit
  7. Alyssa's surgey update
  8. Great News for Gabe!
  9. an uneasy question
  10. Choking!
  11. I need your opinions ASAP
  12. oklahoma texas and kansas familys HELP HELP PLEASE!!!
  13. Can someone make sense of this for me??
  14. More news Shunt/IT - updated Thurs.
  15. Update on sleep study
  16. Venting!!!!!!!!!!!!!!
  17. Not MPS But....
  18. Update on Steve
  19. MPS doctor in Europe???
  20. AFO question
  21. new primary care manager
  22. 24 hr stay in ICU changes my outlook
  23. Alyssa's surgery update #2
  24. Update #2- Steve is now in surgery
  25. Add'tl travel before OHSU
  26. Update #3- Steve's surgery
  27. Lyrica
  28. night splint and arch orthodics
  29. Cenia upcoming surgery
  30. We think the hernia is back :(
  31. Tubes Again?!
  32. Prozac for chewing
  33. Sleep
  34. Another seizure
  35. Surgery 9/13
  36. Eyedoc today
  37. Programmable shunts w/reservoir - very important!
  38. Gingivitus UPDATE 10TH SEPT
  39. Eye checks.....
  40. Overnight hospital stint...Sigh
  41. HERE WE GO AGAIN!!!!!! updated 9/12/07
  42. UGHHH
  43. Nathan's behavior again....
  44. Another Tooth Question UPDATE 9/12 1:40
  45. Surgery
  46. Grinding teeth
  47. LP for sanfilippo????
  48. Surgery update
  49. genestien
  50. Never underestimate the Power of Prayer!
  51. Small/Slit ventricles and Hydro
  52. Hearing
  53. teething and teeth?
  54. jarin iv and port
  55. Good news for my sweet Izzy
  56. LMA
  57. Different opinions, Drs./Shunt
  58. Shunt tests today
  59. jarin is getting his port tomorrow (9-20-07)
  60. Izzy's LP and MRI Today
  61. Chip in hospital
  62. jarin update...
  63. Clay's carpal tunnel surgery
  64. Headaches, new updates
  65. Official Diagnosis MPS II
  66. Steve has gained his wings
  67. Extra Teeth?????
  68. Spinal Surgeries?
  69. LumbarPuncture - Leg muscle spasms
  70. Carpal tunnel testing
  71. Another seizure
  72. Need Help With ?'s
  73. Pain meds
  74. What is a LMA
  75. Knee straightening
  76. New NeuroSurgeon!
  77. Andrew's g-tube
  78. Achilles tendon surgery
  79. Prayers for Abeerah
  80. Syncopal episode
  81. seizure meds updated oct19
  82. Hips and Hunters
  83. Appt. NS!
  84. secretions
  85. joey's neuro visit today...
  86. Please pray for Cenia
  87. Bad weekend!! UPDATED
  88. GEORGIA - UPDATE - SAT 6th October
  89. Effective Treatment for Sleep Disruption/Deprivation
  90. Glaucoma
  91. Docs In Washington????
  92. MRIresults :-)
  93. Body temp
  94. Can mosaicism account for milder forms of MPS?
  95. Dye Study Results
  96. night terrors/seizures in MPS
  97. Appointments today
  98. New NS - ugh
  99. Port Info
  100. doctor's names/contact numbers?
  101. LP's and opening pressures- IMPORTANT - NEED INFO from YOU!
  102. panic on holiday!
  103. Can anyone tell me what this means?
  104. please help
  105. nathan
  106. coneal clouding question please help
  107. Will's Appt -today and tomorrow!
  108. Drastic Change in Hearing
  109. Carpal Tunnel - How long is recovery??
  110. No more IT injections
  111. Arnold Chiari Malformation
  112. please help not sure what to do?
  113. were headed to miami
  114. Eyeappt again today
  115. MRIresults again
  116. CT and Ortho Appointment
  117. What to do, who will help
  118. Dani has a bad rash ... any help or advice would be wonderfu
  119. Walk/Run and Sammie's Surgery
  120. New Pain meds
  121. Medications
  122. Risperdal question...
  123. Back Brace
  124. Neurology appt today....
  125. Bracelets
  126. Brandon is getting a Pacemaker
  127. Fentanyl
  128. Update on Alyssa's eyes
  129. croup
  130. Lauren is in the hospital *Updated* Lauren is Home
  131. 1 year post shunt
  132. Questions about robinul
  133. Valve replacement surgery question..
  134. Austin gets his port
  135. De-compression
  136. Ulcers
  137. Lets talk about drool
  138. C-PAP here we come
  139. ? ABOUT SEIZURE MEDS UPDATE 10/17
  140. My hip.. updated wed 21st of nov
  141. Bad toe.......
  142. Strangulated Hernia and What to Look For!
  143. Hyperactivity/Aggression, the usual
  144. Curling fingers - sign of something else and what to do?
  145. Gabe is onto week 3 of ERT
  146. The meaning of sleep apnea
  147. Pain sucks
  148. Gross subject but need help
  149. Weird Seizure-Like Thing
  150. Teeth
  151. Updates On Megan
  152. Surgery - other families
  153. Generic Trileptal
  154. Different types of hearing aids
  155. sedation for EMG testing
  156. ETV
  157. cenia had her UPDATED
  158. Paul is havig a cat
  159. seizure diet???
  160. surgery
  161. Bradycardia?
  162. surgery pics...
  163. Nose Bleeds???
  164. Minimally invasive heart valve surgery
  165. Logan is in the hospital: Updated 11/29
  166. Dentist
  167. update on william
  168. Catheterization problems?
  169. New Pain Dr.
  170. jarin sick....
  171. Swollen hands??!!
  172. Athlete's foot..............
  173. update on jarin..
  174. GENE TESTING
  175. Spine dr - confused..
  176. out of control.....HELP
  177. jarins u/s results...kidney ????
  178. update on jarin's ears
  179. When to thicken liquids??
  180. Headed to St. Louis UPDATED!
  181. ABR problems
  182. Hands/Hunter's
  183. testing for MPS III
  184. 6 months :)
  185. Freaky eye!
  186. Clay's teeth
  187. Holden's hearing test!
  188. Jasmin having her mickey button today
  189. Just wanted to share...
  190. Sleepy, headaches and memory loss
  191. Unexplained Fever
  192. MRI-results finally!
  193. freaky eye cause found!
  194. Headaches/ER
  195. Diaper rash
  196. Sinus rinse surgery anyone????
  197. Use of Medication and Behavioral Issues
  198. Hospital 27th-31st
  199. OUR VISIT TO ER
  200. Brief update on Georgia.....
  201. use of genistein and being sick
  202. Advice and help from Cuba
  203. update on anna and william
  204. Reaction,,,,?
  205. isaac's op 10th january.
  206. Trip to UNC
  207. Anyone tried Theratogs?
  208. Liver and Spleen Size
  209. My port..
  210. Aaron Craig UPDATE 28 JANUARY
  211. stupid mps...........
  212. what is this..
  213. UBCOMING SURGERIES FOR 2008
  214. can anyone tell me what this SSEP result means?
  215. Taking Ciara To ER-----UPDATED
  216. NS Appt. in MN Friday
  217. GENE TESTS UPDATE
  218. Intracranial Pressure monitoring surgery date
  219. Immunity
  220. I think Aaron has Roseola..... UPDATE: SCARLET FEVER
  221. Botox
  222. Post ICP monitor 96hrs - Update/home
  223. symptoms, triggers?
  224. Airway distress again
  225. Spots
  226. Agitation????
  227. Prayers for Andrew Bowman
  228. how accurate is the blood test for MPS?
  229. New ideas - Post ICP
  230. ert and behaviour
  231. I am your new sister on this difficult journey...
  232. Izzy: another seizure
  233. Isabelle's genetic appointment----Updated 2-22-08
  234. Cranial Therapy
  235. New Local NS and Pain dr update
  236. Kaitie - Post BMT
  237. Ortho-appt
  238. Asthma Crisis
  239. Swallowing problem
  240. Feeling like a medical oddity vs an actual patient...
  241. Sinus Surgery Feb 19th
  242. I love ear infections!!
  243. Liam could do with some ,messages in his guest book!
  244. Repeatedly waking up, stumbling
  245. Grand Mal seizure Updated
  246. DANIELLE, GRAND MAL ALSO
  247. Dr Muenzer phone number
  248. i need to understand
  249. Toby is still tired and stressed!!!
  250. Mandy will have spinal surgery on APril 16, 2008