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  1. Integra Systems
  2. Not MPS related! Please Censor! Women Issues! UPDATED 7-9-06
  3. Erica's Shunt Surgery is Today Update 6/20 9:00pm
  4. Hip pain continues...
  5. Prayers needed for Liam Hilferty! Update FRIDAY 6-30
  6. Inguinal Hernia
  7. Caleb's Yearly Checkup
  8. Leg splints vs botox injections or surgery
  9. Coughing up
  10. Maddie's Hip
  11. Obesity
  12. Caroline update
  13. Umbilical Hernia
  14. Kariem's MRI - updated
  15. Update on Justin's back
  16. "Cameronator" in the hospital
  17. Genestein??????
  18. Jasmin has a Mycoplasma Bacteria (walking pneumonia)
  19. Prayers for Kraiggy....
  20. cardiology
  21. Spanish Speaking Father Needed for New MPS Parent
  22. Update on Brianna and some ??'s
  23. Skyla's cardio appointment
  24. dmsa (chelation)
  25. severity-how do you know??
  26. Liam needs prayers again :-( 7-9 Updated 4pm
  27. Long time, no see
  28. Yikes, What is Wrong, Head?
  29. Allison's ears UPDATE 7-18-06
  30. Jasmine.. needs prayers
  31. Speaking of Hernias - Updates 7/14
  32. barium swallow study/video EEG
  33. Ultram/Tramadol High ICP caution
  34. Payton's results from his MRI
  35. swallow study
  36. IT'S OKAY TO ASK FOR THESE TESTS...RIGHT??
  37. How is Liam????
  38. Logan's MRI tomorrow
  39. caring for Benjamin with inguinal hernia
  40. Jason's seizure - update 8/19 - decisions, decisions...
  41. Justin's EMG & NCS Test
  42. Logan in the hospital
  43. Neurosurgery Updated 8/2/06
  44. (What should I do?) Update: Shunt Revision surgery Tues. =(
  45. Payton is in the hospital
  46. Finally
  47. Braces
  48. FDA APPROVED MPS II ERT!!!!
  49. tippy toes
  50. Erica's Surgery is today UPDATED 2:00PM
  51. hematology and neurosurgery
  52. Clobazam
  53. Carpal Tunnel Syndrome
  54. Thyroid Levels
  55. Carpal tunnel update
  56. stomach virus
  57. nutritionist
  58. Opening my eyes
  59. 2 Ques. revisions, Hearing Aid
  60. Info on Cornea Transplants
  61. hands
  62. Hernia surgery
  63. Endocrinology visit
  64. life endeavours
  65. Boston area doctors Updated 8/26
  66. keep us in your thoughts and prayers UPDATED
  67. Update on Jasmin - huge mobility issue!!??
  68. Here we go again
  69. Risperdol question...
  70. Cameron's surgery
  71. Eye Surgery for BryanG
  72. OMG Venting
  73. Loss of Permanent Teeth
  74. update
  75. Elavil
  76. Allison's Annual appointments
  77. c-pap or bi-pap
  78. Reglan
  79. More problems with the "Cameronator"
  80. Peroxide
  81. Glasses. Any tips?, Link to Pics
  82. Bad Port.
  83. blood work
  84. Remeron?
  85. Genistein effective?
  86. Elaprase Article in Magazine Genetics and ......
  87. Pray for Kallie, New link
  88. Caitlin's Update
  89. Surgeries, Tests and ERT: UPDATED 8/26
  90. The Port is in update 8/23
  91. mps testing during pregnacy
  92. Pain on one side of body when sick?
  93. bone density/broken femur update 11/18/06
  94. What's bothering Joey? Updated 8/31
  95. Prayers for the Holland Family
  96. Arrhythmias
  97. Movicol and MPSII
  98. Some more questions please?
  99. keep Andrew in your thoughts today
  100. What do you do?
  101. erratic mood swings and behaviors
  102. Caleb's Ears
  103. secretions
  104. Payton is allready home!!!!
  105. How to get a diagnosis?
  106. Can someone explain enzyme therapy to a newbie please?
  107. Home Infusions - ERT ?'s
  108. just curious...
  109. Aaron's testing results
  110. Bryan Getchell (Updated with sad news on 9-3-06)
  111. Flexible Flat Feet
  112. How long from dx to tx?
  113. MY LITTLE BUDDY DANNY
  114. i have a question?
  115. How do you test for liver/spleen issues?
  116. To fix or not to fix (umbilical hernia)?
  117. Roughly, what is the wait between the consult and the BMT?
  118. Bryan Getchell's Promotion
  119. Tears?
  120. Weight gain - Shunt ques.
  121. 1st appt w/geneticist, what to expect? UPDATE, WE'RE HOME
  122. BMT versus ERT
  123. Please Pray for Payton AGAIN!!!!!
  124. MY LITTLE BUDDY DANNY
  125. Where to put this, how to start a fund?
  126. Constipation
  127. Noah Buddy need our Prayers! update
  128. Massage Therapy
  129. T & A 's
  130. Caleb- Joint pain and stiffness
  131. Izzy' mutations
  132. Payton IS HOME !!!!!!!
  133. Another Non-MPS/ML female issue...
  134. CORNEAL TRANSPLANT
  135. Help Aldurazyme Dose???
  136. Need your thoughts
  137. Surgery today for Zahra
  138. Prayers needed....
  139. Danny and his week of testing/consults............
  140. Couch Talk
  141. Splints / Braces Help Needed!
  142. Need some help guys UPDATED 22 SEPT
  143. Danny's Neuro Visit
  144. E-coli
  145. Mobility device / power scooter
  146. Saved A Port!
  147. Dylan is back in the hospital
  148. Danny's shunt is in.......
  149. Eyes
  150. Free Youth Size, Small Diapers
  151. future children
  152. We have a diagnosis!
  153. Sciliosis Update & Thought for your MPSII kids
  154. hey there everyone
  155. Surgery tomorrow
  156. Intrathecal Therapy Update
  157. Enzyme Level ??
  158. I got Prescription for Karmia EMG/NCS
  159. Upper Respiratory and ERT
  160. GAG levels
  161. I don't know who to turn to.-UPDATE
  162. Flu shots?
  163. Owen had his surgery
  164. Dylan is okay
  165. Bullet Shaped Vertabrae
  166. Dani Update and Tentative Date
  167. Tuberous Sclerosis?
  168. clawed hands cause....?
  169. Neurontin
  170. FYI: Remeron, Update: Port
  171. Spinal Cord Compression
  172. Aldurazyme Dose, tiredness?
  173. Katie's c-line...
  174. night time seizures?
  175. Please pray
  176. Heart Surgery
  177. 1st Infusion Today
  178. hip surgery
  179. Kenny's puzzling problems
  180. Question on Hip Issues with Hurler's and other MPSs
  181. Back Surgery Looming, Updated 10/27/06
  182. Cymbalta
  183. Shunt pain, Help!!!
  184. Jasmin
  185. Orthopedics - MGH or Childrens?
  186. Drug Recall
  187. Danny's EMG-Tomorrow's the Day
  188. Scotty's ERT Reaction - UPDATED SUNDAY 10/15
  189. Karima EMG Study
  190. A Very Stressful Treatment Day
  191. Pnemonia
  192. Digital hearing aid and MRI
  193. sweating at night
  194. a visit to the...
  195. Eye Doctor
  196. Surgerys today
  197. I need your advice on a mediport
  198. SURGERY UPDATE ON ANDREW JUMP
  199. Kraiggy's surgery update: 8:30pm 10/18/06
  200. Hearing loss again...
  201. Carpal tunnel recovery
  202. Genistein
  203. update 23.10.06 Jasmin - operation date advanced!
  204. Shunt moms
  205. Carpal Tunnel Twice?
  206. Lump under chin
  207. Neurosurgery & Cardiology
  208. New "Trick" improves sleep!
  209. Back Surgery 11/21
  210. Will has a heart appt Tues
  211. hip surgery
  212. Hospitalization Attire
  213. Makayla in PICU!
  214. Carpal Tunnel - Updated with Questions 11/29/2006
  215. Is this normal??......................
  216. She's Going Home!!
  217. Oh Brother
  218. Ports
  219. Thanks
  220. Advice Needed
  221. Tethered Spine Cord-Updated again 12/5/2006
  222. IV access types
  223. we are headed home!!!!
  224. Lee's first infusion
  225. 1st Infusion
  226. Karima very sick but carpal tunnel study is done
  227. Happy Transplant Day Dani!
  228. Curled Fingers......I have an answer
  229. Growth Rods - for the spine
  230. Our treatment decision :)
  231. Poll: How much growth after 11 - Hunters
  232. What is a growth rod?
  233. Shunt Surgery/Psychosis
  234. 1st Impression on 1st ERT
  235. Medic alert info
  236. Port question
  237. Guided Imagery
  238. Sodium benzoate
  239. What kind of HEPA thingee do I need post transplant?
  240. OPERATION / PRAYERS
  241. Alyssa's ER visit
  242. Justin's Operation - Updated 10:05am
  243. Appoinment with genetics doctor...
  244. Trey has surgery today
  245. Anyone have Muenzer's e-mail?
  246. My Little Buddy Danny
  247. Kyle: TV and a Shunt
  248. Justin's Surgery - Update
  249. CT OR MRI?
  250. Is it inevitable?.......