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  1. falling
  2. Liam--Hurlers test NEGATIVE 9/23/05
  3. Back peddling neurosurgeon..
  4. Another sleep study :(
  5. Adenovirus ?
  6. Carpal Tunnel Surgery Questions
  7. Symptoms on Weeks missing ERT?
  8. Anyone deal with Transient Synovitis of the Hip
  9. Post BMT - Question
  10. Dental question
  11. Afternoon in the ER
  12. Dental - updated Tuesday 20th September
  13. ReVisiting Anti-Depressants? Anger?
  14. Handling Drs and Schedules?
  15. The Specialists vs the Professionals in MPS Care?
  16. Update on Heather & Hope
  17. Chewing on hands and fingers
  18. Cord transplant - Number of days till Neutrophil recovery
  19. Saliva patches
  20. Teagan's update.... 9-14-05
  21. Andrew is still not sleeping : (
  22. Finally... after 5 months..
  23. sudden need to sleep
  24. When is it Happy Enzyme Day???
  25. Question about ERT for MPS II
  26. shoe inserts
  27. Cold Symptoms After ERT Infusion??
  28. Spinal fusion concern for Sam
  29. GJ Tube Difficulty - Looking for Solutions/Advice
  30. PORT ISSUES
  31. Anyone know THESE doctors?? and also Seths genetics appt.
  32. URINE GAG TESTING POST CBT FOR HUNTER SYNDROME
  33. It's Final - Bryan's Going Home!
  34. ML II and CBT/BMT
  35. No Ortho apointment
  36. Need info on ERT more than once a week
  37. MN Travel and Expenses Questions
  38. surgery
  39. Alternative Medicine
  40. Test Result Questions?
  41. Vocational Assesment + Medication question
  42. andrew is going to be admitted to hospital!!
  43. Andrew update
  44. Bryan is back home!!!
  45. Liam info
  46. Seths ECHO results and neurology stuff
  47. What is this Specialists for?
  48. A Mornings Aches and Pains - Crash Landing
  49. Need Information
  50. Need to vent
  51. pain or not exactly pain either..
  52. Neuro Appt
  53. Spina Bifida Occulta?
  54. We have a plan! Updated Oct 3rd
  55. Ty's scary trip to the hospital
  56. Please pray for Tyler...10/19 :(
  57. Here again!!
  58. Help, Clay is sick all the time.
  59. Spine and Rods - Hunters
  60. Possible Neurogic-body miscommunication?
  61. Difference between brain atrophy and high pressure?
  62. TBC
  63. Hunters and Bone Mutations
  64. HELP
  65. 10/10/05 Liam Brain MRI results
  66. So Mad I could Scream - why?
  67. Something scary about Soy
  68. AAAAHHHHH!!!!
  69. UPDATE ON ANDREW JUMP 10-8-05 10PM
  70. Knee Stapling Surgery - update 10/17
  71. How to get rid of Headache?
  72. Question from a Hunter Parent
  73. Joshua's Sleep Study
  74. Brooke Weddell
  75. hydrocephalus, elevated ICP, LPs, shunts, information
  76. crying spells
  77. GAG Cushion Joint?
  78. Decreased Hearing and Tx?
  79. Think of me tomorrow (update 13th of octobre)
  80. CoQ10 dark side :-(
  81. Our trip to Duke and UNC
  82. Severe GVHD reactions and breathing problems post-BMT
  83. BROOKE UPDATE!! (Angel Brooke Mon @ 8:15pm)
  84. William's seizure
  85. slow intestines
  86. It's that time again....updated 10/19/05
  87. C2 CSF?
  88. Please pray for B.J.
  89. Low BP W/Enzyme infusions?
  90. another update on Seth
  91. Jonathan having MRI
  92. Hip Problems
  93. Our Doctor Needs Your Help
  94. Need Advice on Seeing Dr
  95. Dentist stuff....
  96. Caleb's Kyphosis
  97. Liam-More MPS results
  98. Chest Pain in MPS?
  99. Result at last on Night Terrors!
  100. Respiratory issues
  101. Sore Back/Spine?
  102. Kariem's not feeling well (update October 23rd)
  103. Nathan is getting sick..
  104. Liams test was wrong..never sent
  105. add Liam to your prays
  106. Trach-ventilator dependent?
  107. URGENT! Bleeding issues
  108. Need advice on medication....
  109. Pre-ERT Steroid?
  110. Bi-pap
  111. Please pray for Tyler! Update by JENN!!!
  112. Sleep Study Results
  113. Flu Jab!
  114. Miscarriage results-I'm so upset
  115. STORM HEAVEN For Tyler Bean NOW Updated 10:16 (By Chris)
  116. ERT Update
  117. 3 yr old at dentist
  118. Tyler has gained his wings...(Moved to Emotions Section)
  119. Remember Nathan this week
  120. Dr. Peters
  121. ALS Lou Gehrig disorder
  122. Hurler C1/C2 compression
  123. Does ERT turn mps1 into a chronic disease?
  124. Pulmonary edema from Obstruction
  125. Liam-test mix up again
  126. And the results are in...Spine
  127. ERT & The Abdominal Wall
  128. Update on Nathan's appts.
  129. BMT coming up
  130. Caroline is having an MRI
  131. elevated respirations...
  132. New Baby needs support and prayers!
  133. Question about possible Mild Pressure related Problems?
  134. Child undergoing BMT
  135. Another swallow study.....
  136. Stenosis of the Spine
  137. ERT?
  138. Lumbar Puncture
  139. Update on Liams MPS test
  140. we are taking Seth to the the hospital
  141. Tubes, Adenoids and ABR
  142. sorry I haven't been writing...Brianna's update
  143. Family in Israel needs some advice
  144. Leg Braces
  145. Numbness in Toes?
  146. Alyssa's Surgery
  147. wind pain distended tummy
  148. Adenoid regrowth?
  149. Fighting Dr's
  150. Spinal cord compression
  151. Immunization Question?
  152. Please pray for Joshua
  153. Andrew Jump
  154. Prayers for Chloe
  155. Alyssa's surgery update
  156. Prayers for William
  157. Swallow study - some deterioration
  158. Andrew's Heart
  159. Discharged today
  160. Dental Work
  161. Just a quick note...(good news)
  162. How do you get rid of a wart?
  163. Bone marrow!
  164. hello from kathy and katilynn preston
  165. Andrew's surgery
  166. Update on Justin
  167. back from John Hopkins and posted what happened
  168. Sleep Study
  169. Port Troubles...Updated Friday morning!
  170. Caroline is having her MRI tomorrow Morning
  171. Need Some Advice on ERT and Dr..Please!?!
  172. Not responding to Antibiotics
  173. Help! Benjamin is tooooo active- at night!!
  174. Sam's spinal fusion
  175. Hip/knee surgery-We're Home-Updated Fri March 3
  176. Off to St. Judes Again
  177. hello again
  178. Update on Dr situation..12/10..ERT
  179. ANSWERS PLEASE
  180. answers please
  181. Dr.Neufeld's Articles?
  182. A Loss of A Good Friend and Sadness
  183. Will -T&A ,Tubes, Dental op
  184. Hernia??? Updated 12/13/05 sugery scheduled
  185. neurology
  186. Pamidronate
  187. update
  188. Katelyn
  189. Terri Klein
  190. Jonathan's 1yr post transplant check-up
  191. Dr. appointments*SURGERY UPDATE 12/29/05*
  192. Sophie's scoliosis back surgery (New Date)
  193. ERT Good News!!
  194. Need Help with MRI? - Added info See last entry
  195. Sergio needs our Prayers
  196. Good MRI results
  197. Can't get Andrew's medicine
  198. BRIANNA BAYS
  199. GINXED
  200. Questions about ear infections
  201. C-PAP concerns
  202. Help with Orthopedic Info?
  203. Leslie's surgery today
  204. update
  205. It's coming...
  206. Pedicraft bed on ebay
  207. Really Bad Knee Pain?
  208. Not eating
  209. Need advice on dental issue..
  210. Yeast Infection in the Ears!?!? Updated 1/4/06
  211. In ER last night
  212. GAG Breakdown Question
  213. pain & limping
  214. Andrew is sick...
  215. Irregular heart beat???
  216. Skyla's heart
  217. prostate infections
  218. New antibiotic
  219. Kariems surgery
  220. Taking meds
  221. Seizures and Quality of Life
  222. Seth's sleep study
  223. need serious help fast....
  224. It's here...
  225. blood in ear?
  226. Zachie is having surgery
  227. Blowing Bubbles
  228. Muscle Spasms Post Spine Surgery
  229. Port Surgery
  230. Going to the Dentist
  231. Sam's spinal fusion
  232. Zachie Surgery Update Jan 12 Thurs.
  233. need good thoughts for Kent.....UPDATED!!! 1-20-06
  234. Caved in Vs. Barrel ??
  235. Botox
  236. Heel cord?
  237. Upper Spine/Neck Problems..
  238. opinions please !
  239. Send some thoughts for Jenny Klein--update by TERRI! 1/30/06
  240. Surgery tomorrow
  241. Khloe and family needs some prayers
  242. Stomach virus
  243. Unexplained ERT Swelling
  244. Sleep Study
  245. Beta Blocker
  246. Spine, Neck and GAG Soft Tissue Problems?
  247. Prayers needed for Andrew Jump
  248. Chase's sister needs prayers fast
  249. Physical Medicine Rehab Question
  250. Spasticity?