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  1. Andrew's medicine
  2. Chloe is sick
  3. What I'm learning - possible reason for GAG's in urine
  4. hi
  5. One more sick kid
  6. Aaron's Appointment
  7. Reilene's Cardiology Appt.
  8. TyLeR's CrAzY dAy!!UPDATED: 4-15-05 w/BMT schedule
  9. Nikk will be seeing.......
  10. Your opinions, please...dental
  11. Getting tonsils/adnoids out?
  12. Epinephrine nebulizer at home?
  13. Fever 8 days post op
  14. problems with Seth
  15. 911 Prayers NEEDED!
  16. Logan's Neurosurgery appointment
  17. Makenzie having a rough time
  18. red hot feet
  19. How often?
  20. My baby is now a woman, AHH!!!!
  21. Seth's hearing results and the MRI update...
  22. BMT/CBT Sucess, Failure and Feelings/Opinions regarding!
  23. X-Rays
  24. Hannahka's.......
  25. White Fingers?
  26. yes
  27. hi parents of recent back surgeries...
  28. Treating Ear Pain and Infections
  29. Some questions starting to get answered!
  30. Chase is having another surgery
  31. IV IG, Gamma Globulin, or Bubble?
  32. Hydrocephalus Association website
  33. ERT Issues- Please keep me in your thoughts!!
  34. Jon's follow-up visit for MRI/MRA
  35. my letter
  36. BACK SURGERY WOES!!!
  37. Ear/Headache Pain
  38. Impending Hip Surgery
  39. hips
  40. Night in the hospital...UPDATE>we're home!! 5-7-05
  41. Another request from Karen Elrid!!
  42. cardic event recorder
  43. Aldurazyme Trial
  44. Someone Shoot Me to The MOON !
  45. what's wrong???????????
  46. rash=frustration
  47. need help with enzyme testing procedures
  48. appts and drs issues
  49. Question on MPS III
  50. jake
  51. Severe pain....
  52. we're admitted....UPDATE!! we're home for a week
  53. weight loss
  54. Chase scheduled for surgery
  55. ear tubes
  56. Low blood sugar again back to Childred's
  57. Hunter's hydrocephalus question
  58. Stomach/Bathroom issues
  59. admitted, surgery, discharged, home again...
  60. What are some Foods....
  61. back to Duke
  62. Trach
  63. Another Surgery for Bryce
  64. please pray...update 5/27/2005
  65. question
  66. Chase's surgery and important information regarding airway
  67. now for the medical side of Seth
  68. Pain and Anti-Depressents?
  69. Breathing issues/ sleep apnea- Updated 5/26: Still inpatient
  70. Impending Hip Surgery - Take 2
  71. Carpal Tunnel & Hand Surgery
  72. Logan's surgery is scheduled UPDATED 6-1: We are home!
  73. Autism???
  74. LP woes...again UPDATED 6-1 It's SCHEDULED!!!
  75. Prayers for Tyler!!
  76. Aaron's Schedule UPDATE 6/15/05
  77. Mykonos -update
  78. Enalapril
  79. Another MPS child
  80. Caleb's 3 Year Schedule, Another Update 06/09/05
  81. I HATE MPS! updated 27th of june
  82. Questions about behavior/speech decline/diet/specialists, et
  83. Okay...need some medical help!!!
  84. One last LP question...
  85. Taylor's surgery
  86. What to do????
  87. Waiting
  88. did you miss me? updated 6/10/2005
  89. Strange bumps on head.
  90. LP tomorrow...finally! Updated with results 6-10-05
  91. Jacob's 3 year transplant studies...
  92. LP experts- PLEASE HELP!
  93. Darshan just had a shunt done
  94. Virus
  95. swallowing problems
  96. Just a brief Jack Update
  97. Sammie's surgery
  98. gatting sick
  99. hi guys
  100. MRI scan questions
  101. Update on Oystein.
  102. Thank you guys (our re-tests were negative!)
  103. Need your help and prayers.
  104. High Calorie foods?
  105. Abnormalities Questions?
  106. Shunt and MR examination. WARNING!!
  107. UMBILICAL HERNIA
  108. Bailey's MRI results
  109. Report From Minnesota
  110. prayers needed
  111. Ashley Rodriguez needs prayers!
  112. Stutering
  113. T&A w/ tube insertion
  114. When Feeling Down
  115. I swam back to the Island!
  116. Heart Medication
  117. Possible cord compression
  118. Chase needs help ..Looking for Doctor in Ohio
  119. PRAYERS FOR ANDREW JUMP!!
  120. Light Difficulty?
  121. I've got an appointment (update 7th of july)
  122. Bryan Getchell update & questions
  123. Cameron having surgery on hand
  124. kidney/bladder issues?
  125. Prayers Up For Jennifer
  126. Anyone know this doctor from Texas?
  127. CBT in Cincinnati???
  128. Waking Up
  129. ERT questions...
  130. Liam Doc appt coming up
  131. A morning Headache?
  132. Ok Slighhtt Probleemm read on...Updated 9/15 Answer
  133. seths updated hearing test
  134. ITCHING!
  135. Seth :(
  136. Jack's CT scan
  137. Bryan's Going to Get his Shunt
  138. Genetics Yearly visit
  139. UPDATE ON ANDREW
  140. Surgery Today...
  141. Water retention in Testicle area
  142. Sarahs huge sleep variation
  143. Throat infections
  144. Tube feeding
  145. Coping with the Grief
  146. Bryan Getchell's Shunt Surgery
  147. Sanfilippo and Lyme Disease
  148. hearing aids
  149. Could not do Bryans surgery
  150. Can't seem to focus..Ref to Liam
  151. enzyme levels dropping
  152. back pain relief for parents
  153. MPS111A stage three information wanted
  154. Liam urine test postive
  155. Hearing tests
  156. Bryan - Back to Square 1
  157. Question on Nodules???
  158. Help.....your advice please!
  159. hernia help needed
  160. ^^Asher^^ has gained his wings…updated 9-25-05
  161. Going to see the Doctor
  162. Home Remedies???
  163. Caleb's Appointments, Update 07/25/05
  164. Bites and picking
  165. Part 2, Bryan's Shunt Surgery
  166. Corneal Clouding
  167. Can someone tell me what 'Reflux' is?
  168. SA02 levels
  169. Bryan Getchell's Shunt Surgery
  170. What's happening??.........................
  171. Tests before ERTstart?
  172. Please pray for Hope and Heather! Update 8/16/2005
  173. Sleep study in October...
  174. I am looking for advice about spine and hip surgery
  175. Prayers for the King - Sydney Zachariah Haggett "Zachie
  176. Just found a new Hurler baby website!
  177. OMG One Baby with 2 MPS disorders
  178. Medical Issues
  179. Just got back for the ER....
  180. Pamindronate Good/Appt. Emotionally Pits
  181. Physical Therapy Question
  182. Carpal Tunnel /trigger thumbs
  183. Something's happened to Joey ...UPDATED!! 8/2
  184. Stimulant drugs (edited)
  185. GOING HOME!!!!!
  186. Headaches!!
  187. An Extra Prayer for the Bean tonight
  188. 6 MONTH POST CBT FOR COLBY (MPSII)
  189. Appt. with new Paediatrician........Updated 13th August
  190. Something New I to add about Soy-**Updtaed 8-6-05
  191. It's happening again
  192. Countdown to Bryan's Surgery (Again)
  193. Waking Up, PAIN!!
  194. Thanks for all your continuing prayers!
  195. Teagans update
  196. Home from Removal
  197. Medication Reactions
  198. Will's Hips
  199. Allison's Annual Appointments Update 8-21-05
  200. Bryan's surgery update Aug 10
  201. Bryan's successful shunt surgery today!
  202. BRYAN NEEDS HELP and IMMEDIATE PRAYERS!!!
  203. Carolynne and family....
  204. Latest Update on Bryan
  205. Jon is home sick...
  206. Bryan Aug 12 update
  207. Bryan's Update as of Fri., Aug. 12
  208. Genetics Appt Need Advice?
  209. August 14 Update on Bryan
  210. Running Update on Bryan
  211. A trip to the hospital...........
  212. Genetics Appt F/up today.
  213. MPS info for PTs
  214. liam goes to Cinn, Ohio Next week
  215. Bryan August 17 update
  216. Mood behaviours?????
  217. Tonsills, Adenoids and Ear Tubes
  218. Sophie needs more back surgery.
  219. Question about pain meds
  220. My BAD Visit
  221. Cervical Cord Compression ***New information 8-26-05
  222. Bryan's Update from Mama
  223. Bryan Getchell...Grandmother's update
  224. hand/wrist splints
  225. TYLER NEWS :( updated 9-13-05 :(
  226. WEDS WE LEAVE FOR OHIO
  227. Clay and I are headed to Duke and UNC
  228. Supplier for Hydrocortisone (liquid)?????
  229. Genetics or PCP?
  230. Sammie's upcoming surgery at St Judes
  231. Appts. U of MN
  232. Hernia?
  233. those of you who are giving Genistien
  234. SOFTER SKIN AFTER TRANSPLANT
  235. Aspartame
  236. Bryan G Need Some Answers Quick
  237. Liam's Back from Cinn, Ohio
  238. Bren's Back is Breakin UPDATED 9/22/05
  239. croup..need advice
  240. MN Appts
  241. 9/2/05 more results from Liam Ohio visit
  242. Bryan's Surgery's Thursday!
  243. Miscarriages
  244. Jesse's Heart UPDATED 9-8-05
  245. Question about a-L-Iduronidase
  246. Seths T-tube surgery
  247. Hunter Syndrome
  248. Dealing with Medications?
  249. About Ports?? - HELP!
  250. Carpal Tunnel surgery today..