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  1. Knees giving way
  2. Teeth Cleaning and Mitro Valve
  3. isaac's mri results
  4. Questions about MPS--Updated
  5. Liver specialist???
  6. Updates from Portland.updated11/117
  7. Ugh Croup and Dylan's upcoming surgery...
  8. Nikkolas is getting tubes tomorrow
  9. My Diffficult Intubation Experience
  10. Seths ortho visit
  11. We have a diagnosis
  12. Nikkolas Did Great!
  13. Anesthesia for Andrew
  14. Guess what I found...
  15. Another surgery for Sydnee
  16. Need advice on Sleep Apnea issue
  17. Food Allergies
  18. Jennifer is Sick Please say Prayers today
  19. Andrew is having a LP!
  20. Nebulizers ------- anyone need one??????????
  21. carpal tunnel surgery today
  22. PITA (Powered Intracapsular Tonsillectomy and Adenoidectomy)
  23. breathing dificulties
  24. MPS IX - More Similarities
  25. stress and aging
  26. putuitory Gland Function
  27. Caleb's Appointments, Updated 12/09/04
  28. A Question for moms with boys...
  29. off to see nuerology
  30. Crying and can't sleep- updated 12-13
  31. BMT and ERT what to do if no engraftment
  32. Just another Jack Update
  33. CT/MRI Whats the difference?
  34. Has Anyone Experienced This One?
  35. Here is that diet question again
  36. Aaron's Back Surgery (again)
  37. UPDATED 1/7/05 - Severity of MPS II? Severe
  38. Heading to NC tommorow
  39. Bad news and we didn't make it to NC
  40. Emma is now dancing free
  41. MPS II & Dr. Muenzer
  42. 72 hour epilepsy monitoring
  43. One more Ty issue, swallowing
  44. Kyphosis repair
  45. My sight...
  46. Ok whos wiping boogers on their computer screen?
  47. Hip Problems
  48. Atrovent for runny nose?
  49. Laser surgery
  50. Question I know MPS is heriditary but through whom
  51. risperal and crying
  52. Folic Acid
  53. Isaac not well
  54. Johnathan
  55. UPDATED: Jan 4th 7:25pm -72 hour pressure monitoring
  56. Cards for Kraig
  57. Feeding Tube
  58. Andrew's heart
  59. Need help with hydrocephalus!
  60. Writing Campaign for Lindsey Efird to NC Governer
  61. Just a FYI
  62. MRI nightmares
  63. Caleb's appointments, RESULTS 01/19/05
  64. Nurosurgon in town
  65. central sleep apnea/obstructive sleep apnea?
  66. Three Special Guys!
  67. Good luck Ty
  68. Brittney(my cousin) is in hospital so I am MIA
  69. Long meeting with docs and answers
  70. trial with risperdal
  71. Jack's appointments
  72. Seth Update
  73. Logan Update
  74. Interesting news article
  75. Wre home!!!!
  76. Aaron's tube fell out
  77. Any news on TY
  78. Ty update.
  79. Dry nose?
  80. Surgery in May
  81. Will's Sleep Study
  82. Logan update, Part 2- Updated 1/21/05
  83. eating issue...
  84. Opitz - FG syndrome
  85. Possible abscess?
  86. Surgery(updated3th february)
  87. I WOULD LIKE SOME INFO ON THE FINGER RELEASE SURGERY
  88. Spine surgery in 1 week
  89. Home Sick
  90. Convaid Rodeo Wheelchair
  91. risperdal
  92. PLMD question
  93. lee's appointments
  94. Jack Update 1/20/05
  95. Spinal Surgery for Kyphosis - Sophie's experience
  96. Ty's genetics visit
  97. what do you think?
  98. Jesse, Bronchitis and Colloidal Silver
  99. How long on Tests??
  100. what is best for
  101. keep praying...
  102. insurance help
  103. Im so Stupid - I can't find the Seth Update :(
  104. Family Genetics
  105. Progression of Lung Disease?
  106. Ok not sure where to post this (happy dance here)
  107. here is another Seth update...
  108. Prayers for Jacob Irish ~ UPDATED 2/2
  109. HCPCS Code for a special needs stroller
  110. BMT appointment
  111. we're back from the doc
  112. Does your child's room look like a hospital room? Updated
  113. Sorry- More LP/ Hydrocephalus questions
  114. I am so Confused!!!!!
  115. Logan's Neurology appointment- UPDATED 2/10
  116. Checkup/Bryan Getchell
  117. AMy, Misty, Rosemarie, I've got a tough one for ya....
  118. Questions about Carpal Tunnel
  119. CTS
  120. Lung Disease treatments??
  121. What would you do?
  122. Dougie has pneumonia.
  123. Ty has been admitted
  124. Seth's Doctors appt tomorrow
  125. still crying 24hr eeg today
  126. Another disappointing appointment
  127. mildly elev. levels..
  128. update on bens eeg
  129. Finally!
  130. Seizure description
  131. Permanent device for ERT?
  132. A little Shunt information
  133. Hip Dysplasia
  134. Pulmonary Function Test
  135. vail bed
  136. UPDATED SUN 10:45 AM -- Ciara's On The Way To The Hospital
  137. CIARA UPDATE
  138. Ciara Update 2-12-05
  139. FYI about Shunts and Risperidone (Risperdal)
  140. Baffled with "STRYDER"
  141. Remodeling Issues
  142. Seths LP
  143. Another Shot
  144. ear tube surgery
  145. Benjamin update- hurting legs and too much energy
  146. Check this out shunt info, very interesting!
  147. Facial Features
  148. Georgia's swallow study
  149. Almost forgot about the ECHO..
  150. Poor Aaron
  151. Prayers
  152. Thyroid Failure?
  153. Is Pamidronate Being Used for MPS
  154. Teething tip
  155. Prayers for Ciara and Hunter
  156. Ty is going to Dallas for a shunt check
  157. Sick Again
  158. Tyler's PICC Line...
  159. Positive MPS results
  160. Good News
  161. UPDATE-great news!! Updated 2-23!!
  162. What is wrong?
  163. Is the "storage" visible?
  164. we are gonna miss MPS awareness day at school :(
  165. Up date on TY
  166. Insurance Approved!
  167. yes
  168. trazadone and neurontin
  169. Austin's Woe's
  170. yes
  171. COURAGE...??
  172. Managing Joint Pain?
  173. LP?
  174. Mykonos -- pneumonia then rotavirus then hospital
  175. Unequally dialated pupils
  176. Caleb's Carpal Tunnel, Update and Link To Pictures 05/02/05
  177. Sam is Sick
  178. Cardiologist/Pulmonologist...
  179. Just curious!
  180. any word on Seth?
  181. Increase in appetite
  182. Dang dogs
  183. A mom needs info of seizures for MPSII
  184. yes
  185. Andrew's Pulmonary visit
  186. Dealing with Pain?
  187. Ty's MPS II enzyme test is back
  188. Just Curious, What kind of doctors does you child see?
  189. uncontrolable eating/seeking food
  190. Talked to my GC - Ortho.
  191. Night Splints
  192. Chases face turning purple
  193. Pulmonary vs. Heart Issues
  194. HELP...blood pressure question
  195. A recal on Heprin
  196. see final years
  197. MEDICAID ISSUES IN MISSISSIPPI...
  198. MRI...
  199. Carpal tunnel in us Moms?
  200. Trileptal for Seizures? Update: 3/14 PM
  201. NEW Glasses
  202. Seth's surgery
  203. I just found out...UPDATE!!!!
  204. Initial visit with pulmonologist for sleep study with Jon
  205. Hannahka's visist to emergency
  206. STILL sick!
  207. Nikkolas' Pre-Op
  208. NEED HELP --- SANFILIPPO & PAIN
  209. disability question
  210. e.n.t. today
  211. SURGERY
  212. Hydrocephalus
  213. Patient Care Services and ERT
  214. I've been thinking of this...
  215. Nikk's Surgery!
  216. Alyssa's surgery
  217. Tyler's Cardiology Appt
  218. spinal cord compression - leg pain???
  219. loss of balance
  220. hi
  221. parents of recent back surgery...
  222. I'm going to SCREAM!!!! updated 5/20/2005
  223. sick child- not MPS
  224. Extreme anxiety in Sanfilippo
  225. Turning blue around the mouth
  226. Bock bock bock
  227. Another night at the hospital
  228. Andrew Himes Easter
  229. Will's been a sick Easter Bunny too!
  230. Another sick-o
  231. Question - about accuracy of testing?
  232. PT/OT question?
  233. Tendon lengthening
  234. Sunken chest?
  235. Returned from sedated Video EEG
  236. Seizures and MPSI
  237. Longshot does anyone know about Pseudo-Hurler Polydystrophy?
  238. cataplexy have you heard of it?
  239. The next 2 weeks...
  240. Jon's tests and Hannahka's LP are today
  241. Waiting for test results!
  242. UPDATE
  243. Frustrating!!!
  244. Hannahka's Home!
  245. Breathing treatments?
  246. Sam's Doctor Muenzer visit for Spring
  247. CTS question
  248. update on isaac
  249. questions about eyes...
  250. Andrew's Echo