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  1. GI Issues
  2. Tying off salivary ducts??
  3. Anyone need girls orthotic shoes for use with SMO or AFOs?
  4. Nasty bug in our house!...........
  5. AFOs
  6. Elaprase Reactions
  7. another Cameron update 12-23
  8. help with crying
  9. watery stools- mps3. Fed up!
  10. New blood presure med
  11. in vitro and pgd testing
  12. Screaming/Sleeping
  13. Atarax / Vistaril / Hydroxyzine
  14. Anisa to see Plastics
  15. Neurosurg
  16. A wierd virus?
  17. Cameron
  18. Home Infusions??
  19. Hey... we're baackkk.
  20. For Newly Dx Hurler's families
  21. g-tube feeding
  22. Fever after ERT
  23. bladder question MPS IIIA
  24. C-Spine Decompression
  25. Sebastien needs hearing aids
  26. "Mildly Enlarged Ventricles"
  27. Scan Changes?
  28. Dental Surgery
  29. Strange smelling urine
  30. What time of day do you give genestein?
  31. Going back to Vanderbilt to find a Dr.
  32. What I mean by "Bad Day"
  33. Huge Medicaid Mess!
  34. Radiofrequency ablation
  35. Facial flushing with High ICP
  36. MRI or X-ray for spine?
  37. Headaches-LP
  38. RFA today
  39. Getting desperate............!!!!!!!!!!!!
  40. Hands
  41. ER and admitted
  42. Shoulder pain
  43. Circulation Problems
  44. Experience of 'Diazepam'?.......................
  45. Resperadol
  46. home today!
  47. help -Will has to wear glasses!!
  48. Help!!! I need advice!
  49. videos of Cameron
  50. Weight Loss
  51. HE'S BACK!!!
  52. Acupuncture
  53. drooling
  54. Circulation
  55. Lumbar spine symptoms?
  56. Pressure
  57. Autonumonic Dysfunction
  58. Woo hoo! Georgia is sleeping.....
  59. Beta blockers
  60. Decision to Place A G-Tube ...or not???
  61. Anesthesia Hangover
  62. Magnesium deficiency
  63. Ready to pull my hair out. Low O2 leves and heart rate during sleep
  64. Laughing Seizures
  65. MPS & Seroquel
  66. Daniel has some odd issues
  67. Cell Food
  68. Coughing/Aspirating
  69. Hip degeneration
  70. top lateral incisors
  71. Surgery for Barbara
  72. DNR Order
  73. body temp. low, lathargic, heart rate dropping, etc
  74. Hearing question for MPS II families
  75. Allison's Spinal Cord Compression Surgery Results
  76. Tucker is having surgery
  77. Body tempatures
  78. Hard to Figure out what is wrong and how to treat
  79. Update on Jillian
  80. Sanfilippo and Enalapril
  81. Logan Update
  82. BOTOX NARCOLEPSY & EEG
  83. THANK YOU!!!
  84. Should I continue to Blog?
  85. Early Stages of BRain Degeneration?
  86. Cause of stomach pain?
  87. Zach is currently in ICU...
  88. Fluid build up.......
  89. Prune Juice
  90. Reabsorption!
  91. Lee in childrens Hospital
  92. Need info quickly- Bone Scans
  93. Staring Spell
  94. Crying and very unhappy
  95. B's op date set
  96. Results of Orthopedic visit on Monday for Jesse back/hips/legs
  97. Botox, EEG & new dribble remedy
  98. Breathing issues
  99. Candida, Acetaldehyde and Molybdenum
  100. 6 years on ERT, Hurler - 15 years old; sudden changes
  101. On The new Website!
  102. IA City Visit Today
  103. Ian had an "Episode" again
  104. Hair growing back......
  105. Trach question
  106. Hip surgery next year - MPS 1-H
  107. Jack's upcoming surgery
  108. Restless legs?
  109. Ventilation, Trach, Medicine, restlessness in hospital
  110. Tell me about shunt problems
  111. Chewing everything and its really
  112. fever all the time!!
  113. Breathing
  114. Ian's Home from the ER
  115. Brandon's Big Day
  116. cpap, bipap, breathing problems - any experience?
  117. we almost lost benjamin
  118. Lasix
  119. First Op- adenoids. Any thoughts?
  120. Case needs new tubes (and update on us)
  121. Anyone been diagnosed with diverticulitis or inflammation of the colon?
  122. Finally Home
  123. Hurler's Sleeping Pain
  124. question about anesthesia
  125. Hurler's 1st year Chimerisms
  126. Neurontin
  127. I Hate MPS!
  128. swallow problems
  129. Need more advice
  130. Gtube surgery April 16th
  131. High blood sugar / glucose/ diabetes in MPS kids?
  132. Raynaud's meds
  133. Urgent! Need your feed back Tracheal Stents
  134. So what about reflux and feeding tubes?
  135. Has a question re: Payton.
  136. Botox - spine, shoulders
  137. EYE CHECK UP
  138. Georgia's heart scan.....
  139. Depression in our children
  140. trach all the way down to carina- any experience with any of your kids?
  141. Please Help
  142. Surgery Monday
  143. Throat gurgling and congestion
  144. Sickness bug......
  145. Upcoming Surgury
  146. Surgery today
  147. Jaeda is falling a lot..pain or progression?
  148. Future help for intestinal failure and malabsorption.
  149. Spine, Joint Pain update!
  150. Fisiotherapy - fingers ,hands, arms and shoulders
  151. So, you want to hear about Zach's week?
  152. * Drugs your doctor wont take
  153. Staring siezures in MPS III A
  154. stange and new
  155. strange eye episodes
  156. Most terrifying thing ever
  157. Chloe is having major lung issues
  158. Jessica is home!!!!
  159. Reglan
  160. Princess Jasmin is on Diazepam
  161. For kids that are tube fed.........
  162. STREP A
  163. Good news!
  164. What we learned abotu Ian in the Study
  165. is 2 types in 1 family possible?
  166. Megan having procedure 6/24
  167. Cameron is back in hospital
  168. MRI RESULTS FOR BECKY
  169. Lucas' Follow up with GI
  170. Post BMT/CBT Dental Issues
  171. Thrush in stoma site......
  172. low immune system problems?
  173. Need advice on umbilical hernia recurrence
  174. Treating fever in kids with MPS???
  175. Repeat Visual Fields with Abnormal results??
  176. Query re. constant colds and blocked nose/ears
  177. Logan's G-tube follow up
  178. bad news on top of bad news, on top of more bad news...
  179. Surugry Tuesday 7/6
  180. What we found out about Cameron
  181. toe walking
  182. There is something wrong with Ian
  183. behavioral, depression or something else?
  184. Anyone heard of this drug?
  185. Glaucoma
  186. UTI and sediment in urine
  187. Have you heard of 'Asphalia'???
  188. Hand splints.........
  189. Knee surgery AND ankle surgery
  190. Excessive drooling and tongue movements
  191. I know we have covered this topic but I cannot find it
  192. ICP Bolt Monitoring,
  193. oh MY CAMERON....
  194. weight loss
  195. Sensory Issues and Dark Tooth
  196. MRSA
  197. Constipation
  198. Jack is getting a port
  199. Megan's Bronchoscopy
  200. bad news - abr
  201. Shunt Placement Tomorrow
  202. So much going on....
  203. Constipation
  204. orthopod experienced with MPS
  205. Swallowing and G-tubes
  206. Severe Acid reflux....
  207. Signs of hydrocephalus
  208. enlarged Thymus or tumor?
  209. Legs Not Straight, Foot Turns In
  210. Tendon transfer in the thumb/hand
  211. Isaiah still crying
  212. Hydrocephalus survey - please read!
  213. Any use Felene Melts
  214. Muscle loss
  215. Thickening Mitral Valve
  216. Respirdol
  217. Tendon transfer surgery is now monday
  218. What are your thoughts.......
  219. Urgent Stroke/ Hydrocephalus/ Neurological damage? How do you know?
  220. Hip replacement for children under 12
  221. Shunt Question
  222. Home Infusion
  223. G-Tube Stoma Drainage
  224. Cardiac changes..
  225. Another infection.........!!!
  226. Tube feeding & dental issues......
  227. Suggestion for transitioning a four year old from liquid to pill medication
  228. Medications through G-tube
  229. staph again
  230. Autoimmune Hemolytic Anemia
  231. Impaction.......
  232. the broken record...port infection
  233. Jasmins back at School!
  234. Hurler & Asperger Syndrome
  235. Homeopathic doctors?
  236. Walking issues
  237. Eye problems??...................
  238. Another Question about Eyes
  239. Diabetes Insipidus
  240. ICP
  241. Heart valves
  242. His abdomen is extremely distended
  243. shivering
  244. Cold Hands and Feet
  245. Hgh Blood Pressure?
  246. When is it time for a G-tube
  247. sleep issues (weighted blankets)
  248. Please help us book an appointment! Referral from pediatrics.med.unc.edu
  249. Jazzy in hospital....
  250. carpal tunnel release surgery