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  1. a prayer needed
  2. More Seizure issues
  3. Risperdone and Seizures
  4. Free stroller to anyone who can use it
  5. Mucous in stool (AKA poop)
  6. Fingers and ERT
  7. Has anyone else dealt with PSI?
  8. Scarey Seizure
  9. Sleep Meds
  10. Need Help Kenny Had is worst Seizure Yet
  11. Finger chewing
  12. Keppra and Moodiness
  13. Any kids had their tonsils out???
  14. Let me pick your brain
  15. Meet. Ped Surgeon to put in Port#2
  16. Joey's GI appointment today
  17. Seizures and Diastat
  18. Abilify
  19. Still seizing
  20. Andrew's heart
  21. ENT today :D
  22. Newbie test questions
  23. VISION APPT: GOOD NEWS
  24. Let's dance!! Updated we are home!
  25. HELP!!! Behavior
  26. Leaving for Milwaukee again - sinus surgery
  27. Joey's endoscopy
  28. no sleep
  29. Bailey's dr appt
  30. More seizures!!
  31. Great Pulmonary follow-up!
  32. Another genetic testing question
  33. Baclofen
  34. All the Appts
  35. WE MOVE.org
  36. Insurance letter.
  37. First blood test
  38. Ortho appt, thurs 13th of march
  39. Sleep Study - update 3/26
  40. Blood flow problems
  41. Joey's follow-up with GI doctor today, etc.
  42. EEG Results
  43. temporary facial hemiparesis
  44. Seizures are back
  45. Allison's port problems UPDATED 3-18-08
  46. Pulmonology Jinx-UPDATE:3/18
  47. Stomach pain
  48. Port issue
  49. Chip in hospital
  50. isaac has a chest infection
  51. Infusions, Appts - which one? - update
  52. MEDICINE BLOOD LEVEL QUESTION
  53. false positives
  54. Adaptive stroller/wheelchair
  55. ?? General anesthetic / colds
  56. Help! final stages of Hurlers udated 3/26
  57. i am just..
  58. Allergy Allert
  59. Technical Question about the skin biopsy
  60. Who does the tendon release surgeries??
  61. Botox with serial casting vs Achilles tendon release~
  62. New contact lens:
  63. Sasha's first tremor?
  64. Help with Use of CLINDAMYCIN?
  65. Transplant Questions
  66. High CK levels
  67. david has the andeovirus
  68. Flector Patch - NSAID
  69. 1st appt. with the neuro since MPS III diagnosis
  70. An Answered Prayer... Insurance Issue
  71. Sleep study
  72. Jasmin in hospital **Updated by JW on 4/14/08
  73. Nightime Seizures / passing out
  74. Cymbalta
  75. Low sodium levels and seizures???
  76. Update on 1st appt. w/neuro since d/x
  77. DAVID STARTED TO EAT LAST NITE!!!!
  78. portquestion
  79. GOOD TO KNOW DRUG INFO
  80. Port surgery #2 , monday
  81. Dr. Muenzer
  82. Cincinnati Childrens hospital is wonderful
  83. David grew cells!!!!!
  84. sebastien in hospital
  85. Pray for Sarah Noble
  86. Repairing Nerve
  87. Need advice
  88. Genetic/technical question about Sanfilippo
  89. we get to leave the hospital next week!!!!!
  90. Sasha's biopsy results are in
  91. Xopenex
  92. Couple things-movements, spells, etc.
  93. Our Risperdal experience..
  94. botox for underarm sweating
  95. Tarsal Tunnel: UPDATE 4/17
  96. Surgical related degeneration
  97. More seizures
  98. Neurologist
  99. sanfilippo blood test
  100. Any Lysosomal Specialists in the Northeast?
  101. An update for Shelby
  102. a quick question..if you don't mind....
  103. Other congential or genetic diseases/syndromes testing
  104. New Port: UPDATED 4/25
  105. Pushing for Answers fast
  106. Head Injury Update 4/21
  107. david is growing back his own cells
  108. Cleveland Clinic
  109. Duke visit
  110. Sam's 6 month with Doc Muenzer
  111. Joey fell
  112. pain management, etc.
  113. blood flow to the extremities
  114. Hernia Post-surgery 1 wk out
  115. jarin fell down the stairs...
  116. Cardiology appt:-)
  117. Sasha's seizures
  118. I need your stories...
  119. We're Home
  120. MPS 1
  121. Do AFOs help or not???
  122. a question for a friend
  123. NO WALKING FOR AT LEAST 4 WEEKS FOLLOWING HEEL CORD SURGERY~
  124. MRI tomorrow updated 5/9
  125. I NEED INFO ON DR. PETERS
  126. Mps oklahoma
  127. I hate GI
  128. Has anyone ever had?
  129. Update on Andrew's shunt
  130. Dr. Peters
  131. Further testing
  132. seizure
  133. jarins orthopedics appointment scoliosis
  134. Will port operation
  135. SLEEP STUDY RESULTS
  136. Good GA!
  137. Medical Equipment
  138. Shivers after seizure?
  139. The Long Story
  140. HELP WITH ORTHO SURG IN WA!!
  141. Quuestions (probably really long)
  142. Update on Jon V 5/17 12:30pm
  143. 2 Types of MPS????
  144. Airway Grade
  145. Levels, Swallowing, Mini spells
  146. Very confused
  147. Carpal Tunnel Surgery question
  148. results from test Updated!!
  149. Andrew's results = more questions
  150. A trip to the ER
  151. Seizures are getting worse
  152. Ferritin level
  153. Genetician (sp?) appt
  154. isaacs legs
  155. measuring genistein dose
  156. Good news!!
  157. Updates
  158. Baby will be here on June 24th at 10:30am
  159. Hearing loss for hunter's boys
  160. Hammer Toe
  161. Anybody else in MN 6/13-6/20?
  162. Preparing a list of questions for specialist
  163. Metabolic clinic update/questions
  164. Need some help Please
  165. again...
  166. splint or afo wearing after achilles tendon surgery~
  167. Liquid Melatonin
  168. Recent Eye Exam:
  169. MRI
  170. Heart Trouble
  171. WHat is Glycine?
  172. FM System
  173. Caleb's Appointments, yet another update 06/20/08
  174. Feeding tube.
  175. Thickening of heart muscles post transplant
  176. My poor little man!!
  177. SPINAL STENOSIS
  178. Abnormal EEG results
  179. C-spine Thyroid abnormality
  180. Combination MPS question
  181. Bent fingers: possible treatments?
  182. Tough days
  183. I am so confused
  184. Bulging disc?
  185. Tarsal Tunnel next week
  186. Update: We won't be going to the Symposium
  187. Heart ?'s
  188. Updates and Some Questions
  189. carpel tunnel surgery
  190. Jeffery Needs Help
  191. In need of some suggestions
  192. portissues again..
  193. Bursitis???
  194. Problem with casts
  195. Joint pain & inflamation
  196. Andrew's cyst Updated 8/1/2008 Stitches came out!
  197. Chase Veliz needs prayers
  198. Ahhh Andrew's hand surgery
  199. Update on Kaiden
  200. Spinal surgery for Zach
  201. Skyla's cardio appt.
  202. Danny Walking around
  203. Humid weather
  204. late Neurology Appt update
  205. Skyla's cardio appt
  206. Bowel concerns
  207. Help ideas needed!!!
  208. The day has finally come.....
  209. Alyssa's hospital stay
  210. Ear Tubes
  211. regarding Bens*Mommy post " IAM SO CONFUSED" posted on 6/24
  212. URGENT Corneal Graft/ Transplant
  213. Surgery now or later - Updated 7/25
  214. Tuckers home!!!!
  215. ENALAPRIL
  216. Pinworms
  217. A word about hydrocephalus...
  218. Diagnosis questions, not sure where to post....
  219. Mic-key button placement`
  220. SIADH
  221. Alyssa is still sick!
  222. Multiple MPS UPDATED ON PAGE 3
  223. UNC opinion of Tarsal Tunnel
  224. MRI results... need sleep!!!
  225. Some results and more questions
  226. Name brand verses generic
  227. A little too much vacation
  228. Allison's annual appointments UPDATE 8-10-08 We are HOME!
  229. Spasticity
  230. Paleness
  231. 2 1/2 hours with GI
  232. Knee immobilizers (spelling??)
  233. Spine updates from MN
  234. Transplant Moms ... Updated 8/13/2008
  235. lip rash
  236. Leaky Ear!
  237. We met surgeon today.....
  238. Post transplant, first round of immunizations
  239. Update on Kaiden
  240. Kraig is in the hospital
  241. Andrew's Heart
  242. Nerve Conduction Study
  243. Video EEG Monitoring
  244. testing for carpal and tarsal tunnel
  245. Behavior Meds for aggression
  246. Need to see Dr. Escolar
  247. ER Visit
  248. Increased symptoms
  249. Aspiration Pneumonia
  250. Lucas has pneumonia