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  1. WORLD Symposium
  2. Disney Conference December 2004!!
  3. GLUCOSAMINE STUDY
  4. Latest issue of Courage!
  5. Disney World--December 2004!!
  6. Disney Dreamin' - New Resort Info!
  7. Northeast Regional Beach Pary
  8. Fundraising Ideas
  9. Education Booklet
  10. Dr. Munzer's Family Day
  11. From the National MPS Society RE: Casual Dress Fund Raiser
  12. Encouraging news from TKT
  13. MPS Symposium in Mainz - Germany
  14. BioMarin Making News Release TODAY on Phase 3 Aryplase-MPS6
  15. Blue Hair = Casual Dress for MPS
  16. Disney World - Curious about the numbers!
  17. Disney Again...When will you be arriving?
  18. Report MPS International Symposium Mainz
  19. Beach Party Pics!
  20. TKT gets fast track approval for Hunters ERT
  21. Financial help with conference expenses
  22. Texas families
  23. Question for those going to the conference, Car vs shuttles
  24. Interesting Links
  25. MPS Family Day at UNC
  26. Refrigerators at The Conference in rooms
  27. Looking for an MPS Walk/Run in Your Area?
  28. Disney Conference...where will you be staying?
  29. NORD 2004 Family Conference in Minneapolis
  30. MPS Forum Party at the Annual MPS Conference at Disney!
  31. Additional get-togethers at December conference
  32. More news from TKT regarding I2S for MPS II
  33. MPS Walk and Run LA!
  34. TKT's I2S for Hunter Syndrome Receives Office of Orphan Prod
  35. Error on Biomarin Race Invitations!
  36. Error on Biomarin Race Invitations!
  37. Actual costs for Disney conference as member of the society!
  38. Decmeber Park Hours are up on the WDW site!
  39. Disney Itinerary information
  40. Northwest 5K Walk/Run 2005!!
  41. 2nd Annual Run for Reese
  42. Change in the hotel for Disney Conference
  43. Just me (flip-flop)
  44. How many are going to Florida In December?
  45. Disney's Contemporary Resort
  46. Disney Magic Fireworks Cruise
  47. Latest Legislative eNews
  48. TKT's Research Findings on Intrathecal Delivery of I2S
  49. Christmas at WDW
  50. Houston MPS walk/run
  51. WDW Special Assistance Pass
  52. Lunch at Rainforest Cafe (Animal Kingdom) Friday, Dec 17
  53. Meals for December Conference Trip
  54. Prevention of neuropathology in the mouse model of MPS1
  55. Spencer's Birthday at Disney
  56. Rainforest Cafe NEW INFO please look ASAP!
  57. Nov. 16 conference registration deadline!!!!!!!!!!!!
  58. Chef Mickey's
  59. When will you be arriving?
  60. Arrivals and Departures...
  61. Transportation from the Airport
  62. Disney meal vouchers
  63. Florida Weather
  64. those going to Rainforest Cafe
  65. Magic Wishes cruise
  66. Disney clothes
  67. GKTW
  68. Hoop-de-Do
  69. MPS Confrence info
  70. see you all when we get there at disney!
  71. Flordia Conference WEATHER Update
  72. Stroller for a child with MPS II
  73. raising awareness
  74. hi thanks for making us feel soooooooo welcome!!!
  75. Had a great time at the conference
  76. Slideshow for 2004 Walk/Run LA
  77. EParent Teleconference
  78. Klenke Bowl 2005 ~ UPDATED Photo Story
  79. Polish research
  80. Fundraising Question
  81. MPS RIBBONS
  82. ERT for MPS6 coming soon!
  83. What are you doing on MPS awareness day?
  84. ERT for MPS II patients
  85. MPS Day and the Nasdaq
  86. ACTION REQUIRED -Congre. Resolution: Natl MPS Awareness Day
  87. BMT and ERT in the press!!
  88. Golf Tourney MPS fundraiser
  89. We got to say MPS on the news today
  90. Interesting Article about Hunter's Hope
  91. Guess what my Boss Said
  92. Benefit Concert March 4th Ohio
  93. media coverage
  94. Where are all the Elves?!
  95. Finally my last BIG MPS / ML Awareness effort
  96. Andrew's MPS Sign
  97. Heres the article and news clip
  98. Nasdaq Opening for Awareness Day
  99. Disney Conference Photo Album
  100. We made the paper
  101. Link to view Rosies news article
  102. Wristbands for Marrow Foundation
  103. T-Shirts
  104. Courage Bracelet Arrived Today
  105. Does any one know.....
  106. Fund Raising
  107. LA Walk/Run LA Ideas
  108. House Resolution....We still need your help!
  109. in the news . . . . . .
  110. WALK/RUN April 23rd in MICHIGAN
  111. New Website Offers Comprehensive Information on Hunter Synd.
  112. www.MPSVI.com
  113. Articles about ERT for MPS I in Canada
  114. Maryland/Tri State Social Gathering/Meeting
  115. TKT acquired by Shire - PRESS RELEASE
  116. WORLD Symposium 2005
  117. Come to the Beach
  118. 2005 WORLD Symposium
  119. Burlington Vermont Marathon-UPDATED 6-20-05
  120. Medicare/Medicade Waiver for Disabled Kids
  121. Midwest Gathering!!!!!! SATURDAY, JULY 30th ~ UPDATE
  122. EP Resource Guide ~ copies available
  123. Memorial Day Weekend in Williamsburg
  124. Fundraiser question
  125. I'm going to have to create my OWN Midwest Gathering!
  126. Atlanta Gathering
  127. Action Needed!
  128. Maryland Social Pictures are UP!!
  129. Cord blood article
  130. OHIO MPS Country Celebration
  131. LAST MIN CHANCE
  132. Polish research proving Genistein can help our children
  133. FUNDRAISER RESULTS
  134. A Letter From My Congressman
  135. Cincinnati Hospital doctors
  136. New MPS II study results!!
  137. UK MPS CONFERENCE NORTHAMPTON!
  138. Run For Reese/Jog For Jordan--UPDATE! 10/8/2005
  139. Walk and Run LA Information Updated slideshow!
  140. Courage and Directory
  141. Need TKT Results....
  142. statement on the use of Genistein in MPS patients
  143. Tommy's In The "US News & World Report"!!!
  144. For brief summaries of effects of genistein
  145. Andrew's Walk and Roll for MPS
  146. Shire's acquisition of TKT
  147. Need IEPs please!
  148. NORD Conference
  149. IDEA Alert
  150. Walk in Fort Worth, TX
  151. IDEA Alert ~ IMMEDIATE ACTION NEEDED!!!!!
  152. MPS VI in the news
  153. MPS/ML Walk/Run LA - Ideas please
  154. Anyone who is using the genistein
  155. Walk for Great Ormond Street Hospital BMT unit
  156. HELP HELP HELP ~ copies of IEP's needed!!!!
  157. Dash for Danny
  158. Helping before LA's Run! Local families
  159. Congrats to the MPS Board Members
  160. Houston MPS Run Walk and Roll
  161. Genistein project description
  162. hi everyone from kathy and katilynn preston
  163. Run for MPS in Baltimore today(Carolynn Faust)
  164. Run the Park for Maddy
  165. Run For Their Lives Run- Keller, Texas
  166. You'all have fun!
  167. Picnic in the Carolinas?
  168. New Calendar
  169. Florida events?
  170. FDA has it in their hands!!!
  171. Symposium on the role of soy
  172. European Medicines Evaluation Agency (EMEA)
  173. More trials with genistein in Italy!
  174. International Conference in Italy
  175. Exciting - Trials for Morquio A!
  176. Ambrotose from Mannatech
  177. Look at this!
  178. MD Skeptical about Genestein
  179. MPS Meeting In San Francisco
  180. St. Louis gathering ~ Saturday, April 8th
  181. Genistein and ERT
  182. MPS Awareness Day Fundraiser
  183. Good news
  184. 6 more monthes
  185. MPS6 ERT approved in Europe !!!!!!!
  186. MPS/ML family get together in KS
  187. MPS Awareness Day and School
  188. kick-A-Thon for Lee
  189. "come out of your shell for MPS/ML" UPDATED!!!
  190. Dress for MPS Awareness Day
  191. MPS Awareness "Suckers"
  192. Help Us "Lick" MPS!!! UPDATED (3 times!)
  193. Riding to Wipe Out MPS!!
  194. RIDDLE FOR MPS.
  195. MPS Day - The Woodlands/Houston
  196. MPS AWARENESS POSTER
  197. FOR MPS DAY. UPDATE ON HOW IT WENT.
  198. Shire Press Release
  199. Coins for Clay
  200. news article
  201. MPS/ML meeting in Chicago in June
  202. MPS meeting in Houston
  203. Something new about soy
  204. June 25, 2006 Northeast Beach Party
  205. contacting Shire (formerly TKT)
  206. 4 more monthes
  207. Finally a Date for Ride to Wipe Out MPS!
  208. MPS Conference, Another Question
  209. Andrew's Walk and Roll
  210. Central CA MPS Gathering Saturday,May 20th Photos added 5/23
  211. CYCLE conference??
  212. WI MPS/ML - update a change to a MPS/ML Day at the Zoo..
  213. Atlanta MPS Family Meeting
  214. MPS/ML CONFERENCE 2006
  215. An Invitation to All...
  216. Free resources...
  217. BOWLING FOR HAILEE 2006
  218. Fundraiser May 13th
  219. scholarships
  220. MONKEY PARTY
  221. Childcare at the conference
  222. Genzyme CM for West Coast States
  223. OKAY ITS SETTLED I'M DUMB......
  224. Party Time
  225. official opening of www.alliancesanfilippo.com
  226. PICTURES from St. Louis Get Together
  227. MPS IIIb trial?
  228. JUST A REMINDER!!!
  229. Minneapolis Meeting July 8, 2006
  230. Lysosomal Disease Network, Dec 7-9, 2006 Orlando, FL, USA
  231. FDA extends review
  232. Fundraiser update
  233. Pictures needed
  234. Sanfilippo Exchange
  235. MPS in dogs, joint & bone disease, and diagnosis
  236. Walk & Run LA - Family Meeting Information update
  237. LETS GET CREATIVE!
  238. Andrew's Walk and Roll for MPS
  239. MPS Conference
  240. Venice Symposium?
  241. Conference Arrivals and Departures
  242. weather for the conference
  243. How are we going to know each other??
  244. Items needed for the "Our Night" party
  245. ERT APPROVED for MPS II!!!!!
  246. Newport Aquarium
  247. Conference Stuff
  248. Conference Question, Help!, Updated
  249. elaprase.com
  250. The conference was great!!